monitoring decannulated kids
i am very nervous at putting emily to bed and not being able to hear her monitor clicking. we have all our equipment until clinic in 6 weeks or so, and tonight i have hooked her up.
what have others done? i know the hospital would say certianly DON'T monitor, but it's a scary prospect.
mum to emily 12/02/07 (placental abruption)
APGARS 0+1 (HIE gr.2/seizures) but she MADE IT! with the determination that we still see in her every day.
Grade III SGS - emergency tracheotomy July 2007.
2 stage LTR July 09 - DECANNED 27.9.09
tracheomalacia (GONE!! Sept08)
partial agenesis of the corpus callosum
residual VSDs post-surgery but lung pressures normal (Nov08),