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monitoring decannulated kids

Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support.

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09-29-2009, 02:05 PM

saywhatyouwill saywhatyouwill is offline

Senior Member

Join Date: Jan 2008

Location: Scotland

Posts: 1,374

monitoring decannulated kids

does anyone??

i am very nervous at putting emily to bed and not being able to hear her monitor clicking. we have all our equipment until clinic in 6 weeks or so, and tonight i have hooked her up.

what have others done? i know the hospital would say certianly DON'T monitor, but it's a scary prospect.

__________________
*clare.
mum to emily

12/02/07 (placental abruption)
APGARS 0+1 (HIE gr.2/seizures) but she MADE IT! with the determination that we still see in her every day.
Grade III SGS - emergency tracheotomy July 2007.
2 stage LTR July 09 - DECANNED 27.9.09

tracheomalacia (GONE!! Sept08)
partial agenesis of the corpus callosum
residual VSDs post-surgery but lung pressures normal (Nov08),
?septo-optic dysplasia.

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