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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
12-22-2004, 09:04 PM
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Beautifully said Kath! Â*You brings tears to my eyes. Â*How lucky we all are to truly "get it". Â*We are blessed to have our incredibly amazing and strong children and to have the unwaivering friendship and support of the people on this Board.
I'm so happy that Lili is doing well. Â*Merry Christmas, Happy Holidays, and the "whole kit and kaboodle" to you and your wonderful family!  Ann
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Ann-mom to Jack- 14 yrs old;vent dependent;dystroglycanopathy congenital muscular dystrophy; also mom to Hilary (22), Mary (19) and Eric (10) Jack's Journey and Then Some TouchStones of Compassionate Care The Willow Tree Foundation   “Somewhere over the rainbow, skies are blue, and the dreams that you dare to dream really do come true” 
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#2
12-22-2004, 09:10 PM
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Very nice! Thank you for such kind words.
Quote:
I hope you and your family have a wonderful Holiday Season. I am so happy to hear that Lili is thriving and doing so well.
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Amanda,Mom to Jacob, greatest kid in the world. X-Linked Myotubular Myopathy, trach, vent, g-tube. 
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#3
12-22-2004, 10:01 PM
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That was beautiful. Â*I have tears in my eyes.
Thank You Misty
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#4
12-23-2004, 04:08 PM
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Thanks for the glimmer of hope and the words of encouragement. You know we need them.
Amen to the amazing people and the strong, beautiful children who have made us see more of life than we ever thought possible. May we never take for granted all that we have. Happy Holidays everyone!
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Melisande H. Mother to The Preeminent Grand Poohba Donovan (5/27/03), still some "resolving" apnea, on the autism spectrum and some cerebellar malformations. Trached since he was 6 weeks old. Recently DECANNULATED 4/16/09!! Big brother to Conrad! 
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#5
12-24-2004, 12:25 AM
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Nicely put
 I like every one else have tears in my eyes and a lump in my throat....wowo. My son is going in in feb to see if he can be decanned...I cant wait to follow your footsteps thanks again, Happy Holiday Season to ALL
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Casie mom to Skyler 8/21/02 Â*Pierre Robin Sequence, Stickler Syndrome, trached 09/20/2002
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