I hope you and your families had a wonderful thanksgiving. Â*
It's been a while since I've updated on Nick and I promise to do so as soon as I get a chance. Â*He is doing great, a few minor issues we will get through but overall he is doing wonderful. Â*
My question is HOW DO I GET HIM TO DRINK??? Â*The doctors keep telling me drinking is the first thing he should get. Â*Well, it's NOT!!! Â*He has started eating "a little" by mouth (about 4-8 oz. a day). Â*He has tried all kinds of food (baby to table), nothing consistant, nothing in large amounts but he will put everything in his mouth and chew to mush and spit out. Â*Don't get me wrong, I am thrilled that we have started to make progress but the drinking thing is starting to drive me crazy! Â*I can't get any liquid in him unless I put it through his g-tube.Â*I have tried everything possible, bottles, cups, straws, sippy cups, regular cups and he says NO whenever I put it in front of him and the best part is he tries to put it in his g-tube. Â*He knows liquid has always gone in his button and he tries to put any liquid there and none in his mouth. Â*We have been through 3 feeding inst., numerous evals and he gets 3 hrs. a week of feeding/speech therapy. Â*No one can seem to help. So if any of you have any suggestions PLEASE......HELP!
Lots of hugs
Our little miracle, Nicholas Scott born 08/09/02; CHARGE Syndrome, bilateral cleft lip/palate, congenital heart disease, trach and g-tube, hearing aids. Decanulated!