 |
 |
 |
|
|||||||
| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
 |
|
|
Thread Tools | Display Modes |
|
#1
10-31-2008, 07:43 PM
|
||||
|
||||
Rsv Question
Anthony's pumlo said since he is three he no longer qualifies to get the rsv syniges shot any longer...
just curious if any of you have been told the same for your child? I just want to make sure he is covered and so forth
__________________
Mom to Anthony (almost 8) born on 7/6/05 at 29 weeks. Thought to have Jeunes Syndrome trach/gtube/was on vent for 7 1/2 years. Cadence 4 1/2yrs. Jayden 2 1/2 yrs. Stepmommy to Ariana 12yrs. Baby boy due July 21. Email: Babysupermansmommy@gmail.com 
|
|
#2
10-31-2008, 10:52 PM
|
||||
|
||||
|
I have heard the same, they are covered until they are three.
|
|
#3
10-31-2008, 10:58 PM
|
||||
|
||||
|
Joseph got his up until he turned five, but it took a lot of approval to keep them happening. It now seems strange that he got them so long. I wonder if his size played into it? Even now at 8 and a half, he only weighs 32 lbs. Such a tiny thing.
Roberta
__________________
Married to Merrill...33 years...Blessed Mom to 21 as of last count...  Michael-33, Maxwell-29, Mallory-27 Justin-23, Marshal-23, Jesse-22, Jeremy-20, Micah-18, Mordachi-15, Jericho-14, LisaMarie-12, Joseph-11, McClain-9, Joey-8, MacGyver-5, Maverick, McCoy 2, his twin sister Macylea and the youngest Montana 16 months. Malachi and Jason-in Heaven watching over us all. http://www.merrillsimonfamily.blogspot.com/
|
|
#4
10-31-2008, 11:40 PM
|
||||
|
||||
|
thats what i am worried about anthony is only 23 pounds...
__________________
Mom to Anthony (almost 8) born on 7/6/05 at 29 weeks. Thought to have Jeunes Syndrome trach/gtube/was on vent for 7 1/2 years. Cadence 4 1/2yrs. Jayden 2 1/2 yrs. Stepmommy to Ariana 12yrs. Baby boy due July 21. Email: Babysupermansmommy@gmail.com
|
|
#5
11-01-2008, 12:02 AM
|
||||
|
||||
|
G just got his and I was told the only reason he was getting it this year is because he is still ventilated, and he's just about to turn one, so they said next year if he's off vent he will not receive.....
If I remember right I believe Anthony is still ventilated so I would double check Good luck
__________________
Dawn Mom to Geoffrey born November 13, 2007 at 23 weeks,217 days in NICU, PDA, severe BPD & CLD, Pulmonary hypertension, Left Vocal Cord Paralyzed, Pectus Carinatum, Esophageal Achalasia, Plus more minor DX's.Vent Free after 19mths,Trached and Mic-key button on 3/21/08,Decanulated 4/29/2010, Krista 21, Zoee 9,MIL to Antonio 27,Grandma to Mia 3  
|
|
#6
11-01-2008, 01:04 AM
|
||||
|
||||
|
Quote:
Make sure you push for the synagis.... Ayden will be 3 in April and our pulm sayd b/c of Ayden's severe BPD, he should still have the Synagis. Ayden is also decanned this winter, but he still doens't have healthy lungs, even though he hasn't gotten any illnesses in his lungs for 2 years. There have been a few kids I know who have gotten decanned at 2 and stopped the synagis and ended up w/ RSV. Just and FYI to you - that's what we are told. I don't know if it has anything to do w/ the area of the country you live in, but with so many brothers and sisters, someone is probably is most of the winter. (?)
__________________
Dawn  former 26 weeker -- 4/2006 -- trach, g-tube, nissen; came home 1/07 vented 24/7; Successfully decanned 8/8/2008 - Follow decan at: http://sleepy-dogs.blogspot.com/
|
|
#7
11-01-2008, 06:44 AM
|
||||
|
||||
|
They don't offer the shot in the uk (probably why sam has had rsv every year!).I believe once they have turned 3 they shouldn't get it. Not sure I believe that - Sam is 5 - and if they don't get rsv, what do they get instead?
 Julie x
__________________
  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
|
|
#8
11-01-2008, 08:18 AM
|
||||
|
||||
|
Angus only got Synagis until he was 2. He got RSV between the ages of 2 and 3 and it set him back for months - he was back onto 24/7 O2 for 3 months and it took another month or two to wean him down to only O2 at night. This was really disheartening because he was spending hours off the vent each day until he got RSV. He's never been as good since, but that may be because his rib growth really isn't keeping up with his general growth.
__________________
Kate, Mum to: Angus 27/6/04-24/11/10 My star of a boy who was vent and O2 dependent 24/7. One of the loveliest kids you could ever have met. Pics and vids Blog Juliet 28/9/99 perfectly healthy and beautiful Alasdair 28/9/10 Delightful, easy-going boy I'm a 'dawk'  
|
|
#9
11-01-2008, 08:23 AM
|
|||
|
|||
|
Myles had the RSV shot last year. He is probably getting it this year too. I have all the paperwork....his cardiologist feels he should......
As far as I know, they don't qualify for the needle after they are 2 in Canada.........but I could be wrong.
__________________
Mom to Myles, born July 18/07. Trached August 20/07 for airway swelling due to complications from epiglottoplasty. Failed decann June 27th due to lingering laryngomalacia........
|
|
#10
11-01-2008, 09:49 AM
|
||||
|
||||
|
Our doctor won't give after age 2. The CDC and FDA have only recommened and approved it to be used until age 2. Of course it CAN be given after if you get a doctor who is willing. We did fine without it, but I know others might not. If you feel he needs it, fight it
__________________
LORI--MOM TO ELLA AND EMMA(born 10-16-04)AND DEREK (born 9-13-01) EMMA- CP,TRACHED, G-TUBED DEC 2004 AND VENT DEPEND JUNE '05, CORD ACCIDENT DUE TO MONOCHORIONIC MONOAMNIOTIC TWIN PREGNANCY 
|
|
«
Previous Thread
|
Next Thread
»
| Thread Tools | |
| Display Modes | |
Linear Mode
|
|
All times are GMT -5. The time now is 02:35 AM.