What a nurse should consider/remember while aiding

[Jessica's Mom]

What a nurse should consider/remember while aiding the family to care for a tracheostomy pt. which gets to the point of my email. --- First, the nurse should remember that this is not just a tracheostomy pt. It is a child, a baby, a human being that needs to be loved, even more so, then your non-tracheostomy pt. This child or baby needs to play and be interacted with just like a "normal" child or baby. Do not refer to my baby as a tracheostomy pt. Her name is Jessica. You are in my home and yes, I do know way more about children with trach's then you do, treat me that way, and unless you have had a child with a trach for subglottic stenosis, do not question what I say or do. I deserve your respect and if you don't like the way I do something, then tough. This is my baby, not yours.

What are some of the things you feel the nurse should be aware of when working as part of the health care team for the tracheostomy patient? --- I am sorry I had very bad experiences with nurses. I am a part of the health care team, you, the nurses are not. You are a trained baby sitter that is comfortable putting a trach in, I hope. In my home with my baby, life will never be as "exciting" as a hospital, so don't try and make it that way. And I am sorry to say, but I don't think anything could have helped with me not wanting the nurses here. I did not like them in my home at all, but here are some things I really hated. Don't talk to me so much. Don't tell my other children what to do. Don't comment on my home. Don't comment on fights I have with my husband. Don't comment anything because I hated having you here and you are not part of my family and you never will be. Don't bring me your old crap, I am not a charity case. Don't eat my food. Don't comment on how I treat my dogs. Don't comment on my bad habits. You are not my friend. You are here to help me with my baby because life sucks and I can't do it myself and I already feel like a failure, so everytime I talk to you, I am reminded that I can not take care of my baby myself and I need you ---YUCK!!!! Again I am sorry, I hated nursing, I had it from 12-11-02 to 12-22-03 and even though some nights and days I am so......... tired, I love not having strangers in my home!!!!!!!!!!!!!!!!!!!! I hope my comments helped a little.
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AVANDIA HEART ATTACK