I almost called 911 last night. I have never seen Tommy struggle to breathe like he did last night. I kept hearing him cough off and on all night, but around 5 this morning, I heard him barking and wheezing. I picked him up and his teeth were bared, huge retractions, and barking deep down in his lungs. He looked so scared.
I gave him his Xopenex inhaler and started CPT. When he didn't get anything up, I ran him to the bathroom and turned on the hot water in the tub and sat on the floor pounding his chest and back. I realized he was panicked and trying to breathe through his little pinhole of a stoma. Once he started to relax, he started nose breathing again.
He's still a little junky today, having his moments of fear to cough up his secretions through his mouth. I notice he gets like this when he's tired. I just have to keep him relaxed. If he keeps this up, I may need to call his doctors for advice. He's fine any other time, but sleepy time and can't move his secretions is really upsetting him.
Rene, Mom to my Angel, Tommy. Born 9/25/06 at 33 weeks, with Single Ventricle Heart Defects and Cricopharyngeal Achalasia (Gtube dependant, poor swallow). Trached at 2 months for Severe Subglottic Stenosis. My little flirt died unexpectly 8/20/08 from complications from undiagnosed bronchopneumonia.
Forever, Tommy's Mommy http://www.musingsofaheartfamily.blogspot.com/