 |
 |
 |
|
|||||||
| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
 |
|
|
Thread Tools | Display Modes |
|
#1
06-26-2008, 08:50 AM
|
||||
|
||||
Since the LTP he started eating by mouth!!!!
Before the LTP Ayden would only eat a lil bit of dry ceral by mouth & now hes been trying everything & I know he can taste better now because he used to eat cheerios & now he only wants the sugary ceral!Two days ago he ate a whole chicken nugget!& last night he ate two whole nuggets!Im very excited,but a bit nervous of choking too,but I know I have to let him eat whenever he asks.Im so proud of him!I wonder if having no trach makes it easier now?,Hmmmmm>>>>>>Angie
__________________
 Ayden 6 yrs,tracheomalacia,G-T,nissen,rare type dwarfism ,resolved pierre robin,bronceomalacia,Single stage LTP May 2008,now decanned!!! .Ava 2 years www.aydenava.blogspot.com
|
|
#2
06-26-2008, 08:54 AM
|
||||
|
||||
|
Congratulations Ayden another milestone past with flying colors. I am so happy for you.
Michelle
__________________
Grand Ma (or Nanou French version of Nana) to Cedric born on August 5, 2006, Trached on October 16, 2007 because of subglottic stenosis due to 27 intubations for debridment of polyps https://www.babiesonline.com/babies/c/cedric1/
|
|
#3
06-26-2008, 09:24 AM
|
||||
|
||||
|
Aaaaah. Angie. I am so glad to hear a happy story in all of your trials since the LTP! Way to go Ayden!!
When is your next trip to Cincinnati? We are there next Tuesday and Wednesday for voice clinic and MLB.
__________________
Suzanne Mom to: Berkeley (June 2002),Griffin (July 2004), and Parker (November 2006) My family blog: http://www.mylifewithboys.typepad.com Parker's LTP Blog: www.parkersplace.wordpress.com 
|
|
#4
06-26-2008, 09:35 AM
|
||||
|
||||
|
were going back to cinci on monday for a ML &B & leaving on tuesday for home,Why does Parker need voice clinic?>>>>>>>>>>>>>>Angie
__________________
Ayden 6 yrs,tracheomalacia,G-T,nissen,rare type dwarfism ,resolved pierre robin,bronceomalacia,Single stage LTP May 2008,now decanned!!! .Ava 2 years www.aydenava.blogspot.com
|
|
#5
06-26-2008, 11:13 AM
|
||||
|
||||
|
Great news Angie, I so want to see Sam eat a chicken nugget
Juliex
__________________
  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
|
|
#6
06-26-2008, 01:59 PM
|
||||
|
||||
|
Tommy has started liking food since his LTP too! Maybe it has to do with being able to finally taste. That's awesome that he's eating chicken nuggets!
__________________
Rene, Mom to my Angel, Tommy. Born 9/25/06 at 33 weeks, with Single Ventricle Heart Defects and Cricopharyngeal Achalasia (Gtube dependant, poor swallow). Trached at 2 months for Severe Subglottic Stenosis. My little flirt died unexpectly 8/20/08 from complications from undiagnosed bronchopneumonia.  Forever, Tommy's Mommy http://www.musingsofaheartfamily.blogspot.com/
|
|
#7
06-26-2008, 02:13 PM
|
||||
|
||||
|
I'm so relieved and happy that Ayden is taking to eating now! Definitely gives me hope for the future with Angus. Another little boy we know called Aiden was decanned last year, prior to which he ate about the same as Angus does now, i.e not much, but now he'll eat a burger in a bun and stuff like that. Fingers crossed that Ayden keeps up the good work!
Love, Kate
__________________
Kate, Mum to: Angus 27/6/04-24/11/10 My star of a boy who was vent and O2 dependent 24/7. One of the loveliest kids you could ever have met. Pics and vids Blog Juliet 28/9/99 perfectly healthy and beautiful Alasdair 28/9/10 Delightful, easy-going boy I'm a 'dawk'  
|
|
#8
06-26-2008, 02:42 PM
|
||||
|
||||
|
That's great news Angie!
__________________
Angela - mom to Zach 14, Jake 12, Nick 9, & Kate 9/28/06 Pierre Robin Sequence, Stickler Syndrome, decannulated July 4, 2008 -- Kate's blog http://pieceofkateb.blogspot.com/ 
|
|
#9
06-26-2008, 04:12 PM
|
||||
|
||||
|
That is wonderful to hear. Karen
__________________
Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel. 
|
|
«
Previous Thread
|
Next Thread
»
| Thread Tools | |
| Display Modes | |
Linear Mode
|
|
All times are GMT -5. The time now is 08:05 PM.