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Help with Pierre Robin Syndrome

Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support.

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06-07-2008, 11:07 AM

Topher's Mom Topher's Mom is offline

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Join Date: Jan 2008

Location: Central Florida

Posts: 248

Help with Pierre Robin Syndrome

I have a friend whose niece had a baby 2 1/2 weeks ago born with Pierre Robin. They are going to be doing jaw surgery on her this week. I know there are a couple of you on here with children born with PRS & I'm hoping you can help me. I'd like to know if there is a forum like this for PRS - somewhere she can go & get support & information.

Karol

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