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Old 08-20-2004, 02:37 PM
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Ann Ann is offline
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Hi Everyone -
Some of you may remember months ago I mentioned that I wanted to set up a foundation that will provide respite opportunities for parents of medically fragile children - such as a day at the spa, a golf outing, dinner and a movie and things of that nature. Â*Since the conference is now over, I have been able to make some progress on the foundation. Â*I have incorporated under the name “The Willow Tree Foundation”. Â*The name was chosen for the reason that in the raging storm the willow tree bends but it doesnÂ’t break. Â*Much like us parents, donÂ’t you think? Â*I have also reserved my webpage name, although itÂ’s far from being set up. Â*I am now in the process of applying for tax exempt status with the IRS. Â*IÂ’ve found a resource of other non-profit organizations from which I can apply for grant money. Â*I am also putting together information that will be provided to these organizations that sets forth who parents of medically fragile children are, what we do and why we need respite opportunities. Â*In this regard, I could really use some help from you all. Â*What I want to put together is a “Day in the Life” series that features our kids and tells what a day in the life is like - especially when our kids are sick. Â*So . . . anyone out there who has the time and the interest in providing me with a “day in the life” of your child, I would really appreciate it. Â*If you have any questions or suggestions, you can email me privately at: schrooten1@cox.net.

Thanks in advance-

Ann
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Ann-mom to Jack- 14 yrs old;vent dependent;dystroglycanopathy congenital muscular dystrophy; also mom to Hilary (22), Mary (19) and Eric (10)
Jack's Journey and Then Some
TouchStones of Compassionate Care
The Willow Tree Foundation


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