video
seeing if this works since I could not upload it to youtube.
Here's a vid from my camera phone
Bobby wearing his PMV for one of the first times...find his voice.
http://pictures.sprintpcs.com/share....tate=RETRIEVED
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Bobby ~ born 11/28/05 w/Treacher Collins Syndrome
G-tube, reflux, BAHA (bone anchored hearing aid w/a softband), cleft repair
3rd attempt for Jaw distraction surgery successful
airway is 85-100% open!
sleep study all good..
DECAN JULY 15TH!!!
Naked Neck club member!
Finally home w/us since he was 7 months old.
www.caringbridge.org/visit/bobby
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