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Pediatric Tracheostomies For parents and caregivers of children with tracheostomies.  Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support.

 
 
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Old 03-11-2008, 11:11 PM
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kelgreen kelgreen is offline
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Join Date: Mar 2006
Location: LI, NY
Posts: 203
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seeing if this works since I could not upload it to youtube.
Here's a vid from my camera phone
Bobby wearing his PMV for one of the first times...find his voice.

http://pictures.sprintpcs.com/share....tate=RETRIEVED
__________________

Bobby ~ born 11/28/05 w/Treacher Collins Syndrome
G-tube, reflux, BAHA (bone anchored hearing aid w/a softband), cleft repair
3rd attempt for Jaw distraction surgery successful
airway is 85-100% open!
sleep study all good..
DECAN JULY 15TH!!!
Naked Neck club member!
Finally home w/us since he was 7 months old.
www.caringbridge.org/visit/bobby
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