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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
03-11-2008, 11:11 PM
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video
seeing if this works since I could not upload it to youtube.
Here's a vid from my camera phone Bobby wearing his PMV for one of the first times...find his voice. http://pictures.sprintpcs.com/share....tate=RETRIEVED
__________________
 Bobby ~ born 11/28/05 w/Treacher Collins Syndrome G-tube, reflux, BAHA (bone anchored hearing aid w/a softband), cleft repair 3rd attempt for Jaw distraction surgery successful airway is 85-100% open! sleep study all good.. DECAN JULY 15TH!!! Naked Neck club member! Finally home w/us since he was 7 months old. www.caringbridge.org/visit/bobby 
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#2
03-11-2008, 11:21 PM
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Wow!!! He is doing really great with it!!! Sounds like he is going to have LOTS to say now that he has his PMV!!!
 Thanks for sharing!
__________________
Dawn  former 26 weeker -- 4/2006 -- trach, g-tube, nissen; came home 1/07 vented 24/7; Successfully decanned 8/8/2008 -  Follow decan at: http://sleepy-dogs.blogspot.com/
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#3
03-11-2008, 11:48 PM
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I am always so impressed when one of our kids finds their voice! He is amazing!
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Rene, Mom to my Angel, Tommy. Born 9/25/06 at 33 weeks, with Single Ventricle Heart Defects and Cricopharyngeal Achalasia (Gtube dependant, poor swallow). Trached at 2 months for Severe Subglottic Stenosis. My little flirt died unexpectly 8/20/08 from complications from undiagnosed bronchopneumonia.  Forever, Tommy's Mommy http://www.musingsofaheartfamily.blogspot.com/
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#4
03-12-2008, 12:39 AM
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He's doing great!
 Thanks for sharing it.
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SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery). Blog Link: http://ainsleyrae.blogspot.com/ 
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#5
03-12-2008, 05:04 AM
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That was lovely, he sounds really good, thanks for sharing
Juliex
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  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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