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Old 09-02-2007, 07:32 PM
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Join Date: Aug 2005
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Default cerebral palsy and airway issues

For those that have a CP diagnosis- does your child's cerebral palsy affect their airway in any way that you are aware of?

I wonder. Max recently got the diagnosis of hypotonic CP, and it is very mild, but I continue to hear various therapists comment on his low muscle tone in areas that I wouldn't have known were issues. For example during feeding therapy this week, she mentioned he had low tone in his mouth and therefore some difficulty with chewing etc. I am curious about the muscles I can't see in his airway, if there even are any muscles in there (I have no idea!)

Trying to make sense of his failed LTR and prevent further issues before attempting again. I am wondering if his muscle tone could be creating airway issues. He is due for further surgery this spring in an attempt to decann but don't want to go thru all that again if we are missing something...
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Christina
mom to Max born 01.19.05 @ 24wks

LTR 03/22/2007
LTR 07/15/2008
decannulated, but uses CPAP while sleeping
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