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Pediatric Tracheostomies For parents and caregivers of children with tracheostomies.  Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support.

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  #1  
Old 08-16-2007, 07:59 PM
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Default Kara is going to be admitted

Well, after talking to her ped about her sats and her 1st ever emergency trach change ever. She has decided that we are going to the hopsital. Of course it is full so we have to go through the er and wait for a room to open. She also has c-diff and we are STILL waiting for her trach culture to come back. Her sats are all over the place but were in the 70's earlier when I had to do the trach change.Wish Kara luck to get better and home soon.
Rachel
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Rachel mama to Kara Beth April 9, 2004 Laryngomalacia, High pallet, FINALLY vent free (8/05), Precious Smiley Princess who will tell you like it is!!!! & Timothy Sept 2008 Healthy as could be Also expecting again due in June 2010
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Old 08-16-2007, 08:05 PM
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Keep us posted! We'll keep you in our thoughts (and Miss Kara)!
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Melisande H. Mother to The Preeminent Grand Poohba Donovan (5/27/03), still some "resolving" apnea, on the autism spectrum and some cerebellar malformations. Trached since he was 6 weeks old. Recently DECANNULATED 4/16/09!! Big brother to Conrad!

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Old 08-16-2007, 08:12 PM
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Wow, i ams so sorry that your little angel needs to stay at the hospital, that really stinks. i hope they find the culprit and fix her right up. take care and post a update when you can..
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Old 08-16-2007, 08:40 PM
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Christina
mom to Max born 01.19.05 @ 24wks

LTR 03/22/2007
LTR 07/15/2008
decannulated, but uses CPAP while sleeping
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  #5  
Old 08-16-2007, 09:07 PM
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hope you don't have to be in the ER too long. Give the Princess lot's of extra lovin's from us and keep us posted
Leslie
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Leslie, mother to Chris (12), Chase (3) and Chad (2) I have 3 boys cause I didn't want 4. Chase- X 31 weeker, Trachea Esophageal Fistula, Esophageal Atresia, Pyloric Stenosis, VSD, Pulmonary Stenosis, Severe malacia (90% occlusion)..one failed decann attempt
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Old 08-16-2007, 09:12 PM
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Big prayers that she is back to her old self soon. I hope you don't have to wait in the er too long.
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Kristy
Nathan is 7! Trached at 2 hours old--laryngeal atresia. Double stage LTP 5/26/06, double stage LTP 1/23/09 and single stage LTP 4/21/09. Airway has restenosed, but we're still trach free 9/2012. Ding dong, the trach is gone!!
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Old 08-16-2007, 09:23 PM
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and for Kara and mom. Karen
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Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel.

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Old 08-16-2007, 09:43 PM
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Get well soon Kara.
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Old 08-16-2007, 10:12 PM
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I hope she gets better soon and that you don't have to wait long for a room.
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Rene, Mom to my Angel, Tommy. Born 9/25/06 at 33 weeks, with Single Ventricle Heart Defects and Cricopharyngeal Achalasia (Gtube dependant, poor swallow). Trached at 2 months for Severe Subglottic Stenosis. My little flirt died unexpectly 8/20/08 from complications from undiagnosed bronchopneumonia.


Forever, Tommy's Mommy http://www.musingsofaheartfamily.blogspot.com/
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Old 08-17-2007, 02:52 AM
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Hope our little princess is back to normal again soon.
Juliex
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Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14).
I am first and foremost a child
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