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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
06-29-2006, 09:13 PM
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My son Will just got larger shoes for his AFOs. The old shoes are size 11W, and we bought them from the orthotist so they will fit over the AFOs. If someone needs them or wants just to try them for over AFOs, let me know and I'll send them along.
Will is not weight bearing, except for the stander 5 hours or so a week. So, they do not have wear spots from normal walking movements that other kids create. The shoes are used, but wearable to someone. I will send a photo if someone is interested. I recall a thread about this a few weeks back, and it just happened that Will was getting new shoes, so these are available. - betty
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mom to Will, age 14 - 33 weeker, IVH, PVL, now with severe CP, blindness, G-J tube, shunt, trach, baclofan pump - 24/7 care required  Also Mom to lovely Julianna, age 10
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#2
06-30-2006, 06:05 AM
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The problem of shoes with AFOs comes up all the time on the CP lists. I've never had a problem with this. I just bring the AFOs to the shoe store, don't even need the kid!
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Cindy - Mom to Aaron (age 19), trached for 4 years, subglottic stenosis, ADHD, learning disability, former 26 week preemie and identical twin to Eric (age 19), spastic quad CP, moderate MR, seizure disorder; Anthony (age 19), spastic quad CP, g-tube, seizure disorder, cortical vision impairment, profound MR; and Natasha (age 6) CP, cortical blindness, seizure disorder, profound MR, shunt, g-tube.  Home Page: http://www.bissells.com
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