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Old 06-29-2006, 12:30 PM
josephandlisa josephandlisa is offline
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I'm just wondering, has anyone here been decanulated, ltp, etc. from the childrens hospital in Philadelphia....We now go to Dr. Karen Zur, and I was wondering if anyone had their surgery performed in Philly...Thank you,
Lisa and Joe
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Old 06-29-2006, 08:02 PM
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Hinchfamily Hinchfamily is offline
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Adison had karen zur before we had to switch because of insurance reason. She is very nice but very conservative. Wich i didn't relize until one of her colleges said something.

Dr. jacobs is also one of the ents there who is also very nice.

I have no experiance with the ltr, but i think she studied under Dr. cotton.
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Old 06-29-2006, 08:07 PM
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twintotwin twintotwin is offline
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I just wanted to bump this up. I know someone here had an LTP done by Dr. Zur. I forget who?
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Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002).
Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!

The Birthday Boys by TwinTransfusion, on Flickr
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Old 06-30-2006, 09:30 PM
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We go to CHOP, Nick did not have to have a LTP but he was trached and decannulated by Dr. Wetmore (deals with cardiac kids) and seen by Dr. Jacobs many times, they are great! Â*I know Dr. Zur is part of the airway clinic, I have heard very good things about her and her bedside manor.
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Our little miracle, Nicholas Scott born 08/09/02; CHARGE Syndrome, bilateral cleft lip/palate, congenital heart disease, trach and g-tube, hearing aids. Decanulated!
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