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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
11-16-2005, 04:50 PM
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Thank you everyone for your possitive thoughts for Jaden. Things went pretty good. They scoped him after removing the t-tube. He had a couple spots of granulation tissue that had to be removed and there are a couple areas that looked like they may still be weak and possibly need another rib graft. He has a trach back now and we will go back in a couple weeks for a scope to see how his airway looks after some time without the t-tube in place (keeping are fingers crossed it looks good). We have been able to hear his voice a little when he puts his finger over the end of his trach. It's very hoarse, but more than we have ever heard before, so that is very exciting for us. Hopefully he will at least have enough of an airway that he can start using his passy muir valve. Any step forward at this point would be encouraging.
Katie
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Katie mom of 26 weeker Jaden(08-03-01) trached at 2 1/2 months, 2 CTRs and 2 LTPs! Also mom of Haley(1-29-00) and Coleby (07-02-07). 
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#3
11-16-2005, 05:28 PM
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Hi Katie
Glad things went well. I was thinking of Jaden today, great to have some good news  Love Julie
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  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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#4
11-16-2005, 05:51 PM
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So glad to hear things went well! Big cheers for Jaden and his voice!
Dawna
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Dawna, Mom to Tristan 6 yrs, former 22wk preemie with trach (decanned 6/20/07!!), Josh 25, Jenna 21, Gracie 14, and Jon 11. Photography website: http://pricelessmemoriesphoto.com/ 
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#5
11-16-2005, 06:40 PM
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Good news!
__________________
Mom to Breanna (15), David (12), Christopher and Brian (almost 5). Brian decanned in 2006 and had his g-tube removed in 2007.  B & C are surviving triplets. Brooke survived for 1 month.
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#6
11-16-2005, 09:14 PM
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Great news! I hope things continue to move in the right direction for Jaden. He is such a handsome lad!
__________________
Ann-mom to Jack- 14 yrs old;vent dependent;dystroglycanopathy congenital muscular dystrophy; also mom to Hilary (22), Mary (19) and Eric (10) Jack's Journey and Then Some TouchStones of Compassionate Care The Willow Tree Foundation   “Somewhere over the rainbow, skies are blue, and the dreams that you dare to dream really do come true”
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#7
11-16-2005, 11:22 PM
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Katie
Sounds like things went well for Jaden! Hope his voice keeps getting stronger. 
__________________
 Mom to twin boys, Alexander and Aidan born on April 1st, 2003. They are former 25-weekers. Alex was trached from 10-03 to 4-05. Also mom to my lovely new daughter Amelia born August 19th, 2011!
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