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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
08-15-2005, 10:49 AM
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Bobby is going to be in-patient at CHOP all next week for a bunch of endocrine tests, and I'm going to be stuck there with him. Is anyone else going to be around there next week? I'd love some company!
-Barb
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Mom to Bobby, born 10-03, Beckwith-Weidemann Syndrome, trached December 03 due to macroglossia (enlarged tongue) causing upper airway obstruction. Also Mom to Audrey (13) Maddy (11) and Billy (9). Bobby was DECANNULATED 8-17-04 (8months and 1 day with the trach). 
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#2
08-15-2005, 01:26 PM
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Barb,
Patricia and I will be in next week...at least we are scheduled to be. She has surgery on tuesday, and then anticipated 2 nights on PICU. I will post more when I know it. We won't know surgery time until Monday night, and I won't have access to a computer until she is in the OR. When are you heading in? Godspeed Clare
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Mother to 3 Â*Rebekah 12. Patricia 9 and Jacob 7.Â*Patricia--diagnosed at age 4 with VCP/Subglottic Stenosis. Â*Has had T/A, LTP(8/10/01),Trach(2/25/02), 2 trach revisions arytnoid work,vocal chord lateralization(8/10/04) and countless broncs in the last 4 years. Decannulated!! 9/30/05 Â*Patient at CHOP
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#3
08-15-2005, 03:17 PM
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Hi, Clare. I'll be so happy to meet you, though I know you'll be a bit stressed. We should be checking in Mon and staying through Friday. I think she said he'd be on the endocrine/gi floor/wing.
-Barb
__________________
Mom to Bobby, born 10-03, Beckwith-Weidemann Syndrome, trached December 03 due to macroglossia (enlarged tongue) causing upper airway obstruction. Also Mom to Audrey (13) Maddy (11) and Billy (9). Bobby was DECANNULATED 8-17-04 (8months and 1 day with the trach).
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