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Old 08-12-2004, 01:15 PM
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OMGosh Kerry! That is great news. I'm so happy for you. I didn't even realize Andrew was off the vent yet! Fantastic!!!


Ann
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Ann-mom to Jack- 14 yrs old;vent dependent;dystroglycanopathy congenital muscular dystrophy; also mom to Hilary (22), Mary (19) and Eric (10)
Jack's Journey and Then Some
TouchStones of Compassionate Care
The Willow Tree Foundation


“Somewhere over the rainbow, skies are blue, and the dreams that you dare to dream really do come true”
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Old 08-12-2004, 01:31 PM
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Congratulations.That is so wonderful.
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Mom to Breanna (15), David (12), Christopher and Brian (almost 5). Brian decanned in 2006 and had his g-tube removed in 2007.


B & C are surviving triplets. Brooke survived for 1 month.
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Old 08-12-2004, 01:37 PM
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Great news!! Congrats!!
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Amanda,Mom to Jacob, greatest kid in the world. X-Linked Myotubular Myopathy, trach, vent, g-tube.

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Old 08-12-2004, 02:57 PM
abby abby is offline
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congrats!!!!!!!!!!!!!!!!
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Abby, mom to Jared (28wk surviving twin), BPD,Bronchomalacia, vent dependent until8/04,Grade 2 subglottic stenosis, gtube, our miracle child! (Decannulated 3/05)
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Old 08-12-2004, 09:30 PM
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Very good news!! Congratulations!!

Whitney
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Mom to twin boys, Alexander and Aidan born on April 1st, 2003. They are former 25-weekers. Alex was trached from 10-03 to 4-05. Also mom to my lovely new daughter Amelia born August 19th, 2011!
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Old 08-13-2004, 08:15 AM
Bonnie Bonnie is offline
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I love hearing those words!!! Good luck!
Bonnie
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Bonnie, mother to 4 year old Jonathan. Â*He was born 10-17-02 happy and healthy. Â*At 7 months of age he was paralyzed from the shoulders down, diagnosed with Acute Transverse Myelitis. Trached 6-03, on and off vent, Â*g/j tube. Â*
He is true fighter and the love of our lives.
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Old 08-13-2004, 08:32 AM
akabot akabot is offline
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Congratulations!!!!! I bet that was a nice third birthday present for him and your family!

Amy
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Amy - Mother to Corey(4-13-02), 27 weeker (1lb. 10oz.):BPD, Tracheobronchomalacia, Subglottic Stenosis, G-button, been off ventilator since March 2003. Â*Decannulated August 16, 2004 and now g-tube free as of August 10, 2005!!!
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Old 08-13-2004, 10:48 AM
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That is fabulous, enjoy your new life.

Kelly
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Kelly, mother of , Indira 6 (trach and g-tube)[/color] [/color]and Max 4. [/color]When there is no you are the reason I bound out of bed. Thank-you for giving me life!


See Indie- http://www.tracheostomy.com/trachkids/kids12.htm
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Old 08-15-2004, 01:13 PM
Laurie Laurie is offline
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Fantastic! So glad things are going well.
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Laurie - Mom to Evan (the E-man), 27 week preemie, born 2-23-02, trached at 3 months for severe BPD. Vent dependent until 10 months, G-tube placed at 17 months, oxygen dependent until 2 years, 3 months, decannulated 6-27-04 at 2 years 4 months. The most enthusiastic, positive person I've met.
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