Pediatric Tracheostomy Home Care Guide at

Go Back   Aaron's Tracheostomy Message Board > Pediatric Tracheostomies

Pediatric Tracheostomies For parents and caregivers of children with tracheostomies.  Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support.

Thread Tools Display Modes
Old 06-01-2002, 05:20 PM
kathy oliver
Posts: n/a

Hi! I'm new to the group. I never thought that my child could face the possibility of a trach but we may be close. Let me give you a little insight into my son Elijah. He is a 24 wk. preemie who is 5 months old and still in the NICU. He has severe BPD and has been intubated on a vent the entire time. He has been close to being extubated several times but the docs chicken out at the last minute. The big issue is with his CO2 reading which are anywhere from 80-100 regardless of the settings on the vent. They are FINALLY consulting a pulmonologist whose coming on Monday. I have lots of questions for her regarding nitric oxide, steroids (IV and inhaled), different types of ventilator modes/options, and heliox. Right now my son is being trialed on heliox. My son is sooo close to being extubated but for some reason it has not happened. Does anyone have any knowledge or experience with any of the treatments I described above? I know deep down nothing will probably help which is okay. I have already prepared myself for the possibility of a trach and home vent...I think, but would like some insight for those with preemies and on home vents. What's it like? What did you go through? Is it hard? Any insight would be extremely helpful. I hope to be armed with questions when we talk to the pulm. on Monday. Thanks Kathy
Reply With Quote
Old 06-02-2002, 10:38 AM
cariaad's Avatar
cariaad cariaad is offline
Senior Member
Join Date: Mar 2002
Location: Moore, OK
Posts: 6,010

Kathy, didnt I tell you you would get some good responses here? Im so glad you decided to try it. Everyone here can understand what you're feeling right now. And I agree that the best thing you can do right now is ask questions, questions, questions. Kope to be hearing from you again soon. Deb
Grateful thorns have roses
24 weeker now almost 11 years old and in third grade!
trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08
Reply With Quote
Old 06-05-2002, 06:08 PM
Lines dad
Posts: n/a

Hi, Kathy
I'm dad to Line, also a 24 weeker, know 16 months. She was trached at 3 months and vent dependent to 5 months. Her major set back is a severe BPD.
The vent weaning we started to let her be off for 15 minutes and gradually increased the time on thermovent. Her O2 sup- port was in the range 0.5 - 2.0 LPM. The weaning took 1.5 month and she has been off the vent since then. We got her home at 7.5 months. She is still on continous O2 support (1/32 LPM) but we have started this weaning now, with a 2 hour record. Line's on a puls ox at home.
Her CO2 figures were also sky high, but the docs told her that she was used to it and compensated well with a balanced base excess. Line will have a G-tube surgery next week. For the trach, we hope for a late summer decannulation.

I can easily understand your situation having your dear baby on the vent, by remembering back one year. Hang on there and stay strong.

Jan, Lines dad.
Reply With Quote

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

All times are GMT -5. The time now is 11:22 PM.

Disclaimer: The information and resources on Aaron's Tracheostomy Page, Aaron's Tracheostomy Message Boards and the Trachties Listserv are for educational purposes only. This web site and its resources are not engaged in rendering medical, pharmaceutical nor therapeutic advice or professional services. The information provided through these pages, message boards and listserv or any links from this web site should not be used as a substitute for professional advice by qualified doctors and/or therapists.

Powered by vBulletin® Version 3.8.9
Copyright ©2000 - 2018, vBulletin Solutions, Inc.