Pediatric Tracheostomy Home Care Guide at Amazon.com


Go Back   Aaron's Tracheostomy Message Board > Pediatric Tracheostomies

Pediatric Tracheostomies For parents and caregivers of children with tracheostomies.  Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support.

Reply
 
Thread Tools Display Modes
  #1  
Old 03-31-2009, 09:23 PM
ptoezee ptoezee is offline
Junior Member
 
Join Date: Sep 2007
Location: ATLANTA
Posts: 30
Default Bronch's??? How often after decan?

Im just curious, how often are the bronchs after the decanulation? Katie has one in the morning, and I dont know why, I just dont want her to have to go though many more of these. She does well, until she wakes up that is, then she is madder than a hornet.
She started out having them every two months, then it went to 4 months, then 6 months. Im hoping this time it will be a year or more...I am guessing she will have to have them yearly to keep an eye on things????? I dont know, but I do plan on asking the ENT...But what have you been told??

She is also having an endoscopy (spelling??) to check on her reflux. I should be going to sleep...need to get up about 4am to get to the hospital by 6am....ugggg LOL

Thanks
Patty
Reply With Quote
  #2  
Old 03-31-2009, 09:58 PM
drct1245's Avatar
drct1245 drct1245 is offline
Senior Member
 
Join Date: Jan 2007
Location: Colorado
Posts: 4,002
Default

I think it might depend upon why they were trached and how they were decanned. Ayden has never had a bronch after decan in August. He does need his stoma closed, so that will hopefully happen in May and then the ENT might do a scope, but we will find out at our visit in a week or 2.
__________________
Dawn



former 26 weeker -- 4/2006 -- trach, g-tube, nissen; came home 1/07 vented 24/7; Successfully decanned 8/8/2008 -
Follow decan at: http://sleepy-dogs.blogspot.com/
Reply With Quote
  #3  
Old 03-31-2009, 10:09 PM
Hope's Avatar
Hope Hope is offline
Senior Member
 
Join Date: Jul 2007
Location: Monroe, GA
Posts: 1,434
Default

Shelby hasn't had a scope either, since her decann in March '08.
Hope
__________________
custodial g-ma to Shelby ~~ premie born 9/28/05 with choanal atresia, trached 12/28/05 -- sub-glottic stenosis due to repeated intubations, decanned 3/10/08

http://s307.photobucket.com/albums/n...t=4acb482c.pbw
Reply With Quote
  #4  
Old 04-01-2009, 11:44 AM
faywrayy's Avatar
faywrayy faywrayy is offline
Senior Member
 
Join Date: Apr 2007
Location: NJ
Posts: 2,549
Send a message via Yahoo to faywrayy
Default

Kate hasn't been scoped since day before decann (July 08). Her stoma still needs to be closed, so she's being scoped in April. If she's fine, he's going to close it right then. If that's the case, the CNP told me she may only need to be seen a few weeks post op and then be discharged from his care. I was suprised, I thought he might want to do yearlys for a bit. We'll see!!
__________________
Angela - mom to Zach 14, Jake 12, Nick 9, & Kate 9/28/06 Pierre Robin Sequence, Stickler Syndrome, decannulated July 4, 2008 -- Kate's blog http://pieceofkateb.blogspot.com/

Reply With Quote
  #5  
Old 04-01-2009, 10:26 PM
ptoezee ptoezee is offline
Junior Member
 
Join Date: Sep 2007
Location: ATLANTA
Posts: 30
Default

Wow, that is really interesting! Katie had a double stage LTP with rib graft to correct subglottic stenosis. Our ENT does the bronchs so she can check to make sure there is no scar tissue or anything and to see how her airway is doing.

This morning, we got GREAT news! Her airway is growing right with her. The ENT was pleasantly surprised at how well Katie is doing. She uses a size appropriate tube, and we dont have to have another one for a year! YIPPEEE!! The ENT did say that Katie has tracheomalicia, but it is not symptomatic so "lets not fix what isnt broke" as she put it!

Also, this is the FIRST time that she did NOT need blow by O2 when she came back to the room! Her sats were just fine, I was astonished!!!

We are so blessed to have this little girl and for her to be doing as well as she is!

Patty
http://www.carepages.com/carepages/Katiebugspage
Reply With Quote
Reply


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off


All times are GMT -5. The time now is 11:46 AM.


Disclaimer: The information and resources on Aaron's Tracheostomy Page, Aaron's Tracheostomy Message Boards and the Trachties Listserv are for educational purposes only. This web site and its resources are not engaged in rendering medical, pharmaceutical nor therapeutic advice or professional services. The information provided through these pages, message boards and listserv or any links from this web site should not be used as a substitute for professional advice by qualified doctors and/or therapists.

Powered by vBulletin® Version 3.6.8
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.