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| Ventilator Kids For parents and caregivers of children on ventilators. |
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#1
02-12-2009, 06:46 AM
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cycling,cycling,cycling?
When my husband watches my son Billy he seems to cycle,cycle, cycle. There are times it gets to him because he can't get Billy to stop. There are times he yells at him like a regurlar child. I don't know if that's good or bad? Any tips on how he should handle this before he gets to upset? We have a 3 year old in the next room and we've been lucky that that hasn't woken up because of it. But as our other son get's older he will be more aware of it, what can you do?
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#2
02-12-2009, 07:06 AM
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We were told cylcling meant a problem with the vent, not the child. Is their a ton of water in the lines? Have you checked to make sure the alarms are connected correctly? I know if ours are just the slightest bit lose where they connect into the vent we will cycle.
If you can't figure it out I would contact your DME or your Dr and ask what to do. I know ours also did that when our sensitivity was set too high.
__________________
LORI--MOM TO ELLA AND EMMA(born 10-16-04)AND DEREK (born 9-13-01) EMMA- CP,TRACHED, G-TUBED DEC 2004 AND VENT DEPEND JUNE '05, CORD ACCIDENT DUE TO MONOCHORIONIC MONOAMNIOTIC TWIN PREGNANCY 
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#4
02-12-2009, 10:58 AM
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Nate's vent will autocycle if the trach is moved just the tiniest bit. Adjusting him helps. And sometimes air temp around the vent will make it autocycle, i.e., Nate's been close to the fireplace and then we go to his room where it's much cooler. Nate's vent seems to autocycle all the time and we have sensitivity turned off! Our DME called the manufacturer and they kind of suggested I must be making this stuff up because it shouldn't autocycle so much but our DME RT backed me up. There's no rhyme or reason-I guess Nate has a weird effect on machines.
I hope you can figure something out for the family sanity.
__________________
~Caty mom to Bo (4/05) and Nate (3/07 ~trached 2/14/08 for resp. failure secondary to congenital hypotonia~vented while asleep)
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#5
02-12-2009, 03:50 PM
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If the issue is not water in the circuits, then it's likely autocycling due to your son's airleak around his trach. You can try turning up the sensitivity on the vent (I'll go up to "5" on Jack's vent if necessary) or if your son doesn't already have one, he may need a cuffed trach. If he has a cuffed trach, you made need to inflate the cuff more.
__________________
Ann-mom to Jack- 14 yrs old;vent dependent;dystroglycanopathy congenital muscular dystrophy; also mom to Hilary (22), Mary (19) and Eric (10) Jack's Journey and Then Some TouchStones of Compassionate Care The Willow Tree Foundation   “Somewhere over the rainbow, skies are blue, and the dreams that you dare to dream really do come true” Last edited by Ann : 02-12-2009 at 05:42 PM.
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#6
02-12-2009, 04:08 PM
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I agree with turning up the sensitivity. We had to play around with that and positioning to prevent from having to switch to a cuffed trach.
__________________
Amanda,Mom to Jacob, greatest kid in the world. X-Linked Myotubular Myopathy, trach, vent, g-tube. 
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