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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
02-21-2008, 06:11 AM
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First EVER accidental decann!!
Well Sam had his first ever accidental decann at school yesterday. he has been trached for 3 years 4 months! His TA was just walking to the school office with Sam and another child when he just hunched his shoulders, coughed and his trach just slid out under his chin - even with his O2 attached by elastic. She got some help and they had him sorted out in 30 seconds! He was very good and just lay on the floor in the corridor very quietly while they did it. It frightened him a little so he decided to sit out Phys Ed - which he usually loves, but he was fine. Now they realise how important all that training we put them through is
 They did a great job and got to wear 'well done' stickers for the rest of the day.Juliex
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  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child 
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#2
02-21-2008, 07:01 AM
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Wow how cool is Sam
 being so calm.And I bet it is a good feeling for you as a mom to now KNOW that the people that are around him at school know how to react when this happens  I always have this fear that my DD's TA doesn't have enough training and will not be able to react the right way  Good on them and they deserved those stickers 
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Hanna mom to Villi 06/92.Svana 11/99. Álfrún 11/05 Svana Neurofibromatosis (NF1) Trached at 15 mo, ADHD, Hearing impaired, low muscle tone, tube fed only and much more.......
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#3
02-21-2008, 07:27 AM
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It must be very reassuring to know that the caretakers were able to do what needed done. Sam deserves a few stickers himself. Karen
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Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel. 
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#4
02-21-2008, 07:31 AM
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Wow a little scary but I am glad his caretakers were on top of it all.
Michelle
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Grand Ma (or Nanou French version of Nana) to Cedric born on August 5, 2006, Trached on October 16, 2007 because of subglottic stenosis due to 27 intubations for debridment of polyps https://www.babiesonline.com/babies/c/cedric1/
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#5
02-21-2008, 07:39 AM
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How relieving to know they handled everything so well. Good drill! I hope you feel a little relievd to know he is in good hands!
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Mom to Seamus (11/15/06) trached at 5 months for subglottic stenosis and Devin 13 years old. My boys are wild! Single LTP on May 8 2008- successful decann. awoken MAy 16 NO TRACH!!!!!!!!!
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#6
02-21-2008, 08:03 AM
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Sounds like everyone handled themselves perfectly!!
Well done is right!
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Angela - mom to Zach 14, Jake 12, Nick 9, & Kate 9/28/06 Pierre Robin Sequence, Stickler Syndrome, decannulated July 4, 2008 -- Kate's blog http://pieceofkateb.blogspot.com/ 
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#7
02-21-2008, 10:18 AM
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Thank God for the training!
 Glad to hear Sam was such a sport!
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Mom to Jacob, 26 Weeker - Our miracle boy, hero  and the light of our lives Born 06/25/06; trached 10/17/06 for bilateral vocal cord paralysis, laryngomalasia, tracheamalasia, acquired subglottic stenosis, Failed Double Stage LTP 2009, Failed Single Stage LTP 09/16/10, Retrached 10/03/10;CP.
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#8
02-21-2008, 10:24 AM
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Way to go Sam...just goes to once again support how bad the need is to have someone with our children at all times that are prepared.
I know you are feeling good about all of this. Hugs to you, Roberta
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Married to Merrill...33 years...Blessed Mom to 21 as of last count... Michael-33, Maxwell-29, Mallory-27 Justin-23, Marshal-23, Jesse-22, Jeremy-20, Micah-18, Mordachi-15, Jericho-14, LisaMarie-12, Joseph-11, McClain-9, Joey-8, MacGyver-5, Maverick, McCoy 2, his twin sister Macylea and the youngest Montana 16 months. Malachi and Jason-in Heaven watching over us all. http://www.merrillsimonfamily.blogspot.com/
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#9
02-21-2008, 12:35 PM
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Yeah - it feels really good to know that they can cope in an emergency.
Julie
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Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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#10
02-21-2008, 12:37 PM
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Kudos to the team and to Sam for handling it so well. They deserved those well done stickers.
__________________
Suzanne Mom to: Berkeley (June 2002),Griffin (July 2004), and Parker (November 2006) My family blog: http://www.mylifewithboys.typepad.com Parker's LTP Blog: www.parkersplace.wordpress.com 
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