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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
12-15-2007, 07:23 AM
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Bronching yesterday
Well, as always in the lovely trach world we are doing the one step forward, two steps back shuffle.
 Sebastian had both a flex and rigid bronch there was only a trace of granuloma left and his tracheamalicia is looking terrific, just a bit of weakness above the trach but nothing special. Infact we are not even scheduled for another bronch for at least 2 -3 months,  , lol.One thing they discovered during the flex was my son has some rather large adenoids. So large infact it sounds like he will most likely be having them removed, as both my mom and I also had to. Also, on Monday we are calling for our sleep study to get that out of the way. Due to huge adenoids and the sudden flare up in the RSV locally ( they about shoved us out of the hospital after the surgery , lol) the once imminent decann is now on hold until spring, sigh.  Oh well, at least now we can get the adenoids and sleep study taken care of now so we can be ready for the spring...
__________________
May Mommy to Sebastian(1-24-06), hardcore former 26 wk preemie, had and kicked butt of many issues, dealing with a few more , including autism. Trached 4/16/06 @ 3 months due to severe BPD and mild Tracheomalacia. Decanned 9-9-09 and doin' just fine !  http://sebastiansjourney.blogspot.com/
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#2
12-15-2007, 07:55 AM
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Sorry about the delay. Hope the spring comes quickly for you. Karen
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Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel. 
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#3
12-15-2007, 11:22 AM
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Good and not so good news I suppose. Roll on spring!
Juliexx
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  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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#4
12-15-2007, 12:28 PM
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Well, spring isn't that far...is it?!
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Angela - mom to Zach 14, Jake 12, Nick 9, & Kate 9/28/06 Pierre Robin Sequence, Stickler Syndrome, decannulated July 4, 2008 -- Kate's blog http://pieceofkateb.blogspot.com/ 
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#5
12-15-2007, 06:10 PM
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Quote:
__________________
May Mommy to Sebastian(1-24-06), hardcore former 26 wk preemie, had and kicked butt of many issues, dealing with a few more , including autism. Trached 4/16/06 @ 3 months due to severe BPD and mild Tracheomalacia. Decanned 9-9-09 and doin' just fine ! http://sebastiansjourney.blogspot.com/
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#6
12-15-2007, 06:50 PM
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With the adenoids removed and waiting a little bit it's probably more likely to go well. And spring will be here before you know it!
__________________
SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery). Blog Link: http://ainsleyrae.blogspot.com/ 
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#7
12-17-2007, 07:19 AM
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Spring will be there soon... you'll see
Michelle
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Grand Ma (or Nanou French version of Nana) to Cedric born on August 5, 2006, Trached on October 16, 2007 because of subglottic stenosis due to 27 intubations for debridment of polyps https://www.babiesonline.com/babies/c/cedric1/
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#8
12-17-2007, 07:43 AM
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Yes, Spring will be here, and that'll give you time to get your ducks in a row.
Lara
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Parents to Isaac, born 12/8/06, idiopathic bilateral vocal cord paralysis, trach'd since 11 days old, repair of acquired tracheomalacia and Decannulated on May 15, 2008, still with some vocal cord paresis (decreased motion)  
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#9
12-17-2007, 09:11 AM
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I'm HAPPY that you can see a decan in your future! Just think about what you were doing 4 months ago and realize how fast time has flown by since then. I know KY winters are just full of crud and 1/2 snow and 1/2 ice and freezing rain. Not even pretty snow, lol! Just think, Christmas will be here in one week! Before you know it, it will be New Years, then Valentines, and then one day you'll wake up and you'll be nervous and excited and post to us "today's the day!"
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Rene, Mom to my Angel, Tommy. Born 9/25/06 at 33 weeks, with Single Ventricle Heart Defects and Cricopharyngeal Achalasia (Gtube dependant, poor swallow). Trached at 2 months for Severe Subglottic Stenosis. My little flirt died unexpectly 8/20/08 from complications from undiagnosed bronchopneumonia.  Forever, Tommy's Mommy http://www.musingsofaheartfamily.blogspot.com/
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#10
12-17-2007, 12:01 PM
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Too bad you have to wait until spring, but at least cold and flu season will be over and done with and that is a good thing!! Best of luck with the sleep study and adenoids though!!
__________________
Sabrina, mother to Will born a 24 weeker May 4, 2005. History of BPD, Trach August 2005, Gtube October 2005, ROP, Single Stage LTP 1/25/07 and trach free!!!! The happiest little boy who is the center of my world!!
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