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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
11-25-2007, 06:41 PM
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RAD and trach
When your child is sick how do you know if it is the common cold? RAD? What course of tratment do you take? I feel as if Seamus is sick every 2 weeks. HE is sick AGAIN!!! No fever, clear secretions, dry hacky cough at times. When I give him albuterol or prednisone he starts coughing more and then throws up! Any non-medicine ideas that work? I want to make sure I am doing the right things!
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Mom to Seamus (11/15/06) trached at 5 months for subglottic stenosis and Devin 13 years old. My boys are wild! Single LTP on May 8 2008- successful decann. awoken MAy 16 NO TRACH!!!!!!!!! 
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#2
11-25-2007, 07:35 PM
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With Collin any cold would make his RAD (now asthma) act up. The post nasal drip made his lungs so twitchy (still does). We treat it with Nebs Q4-6 hours and of course if the don't help and cough seems worse don't hesitate to bring him in and have him checked out. I always say I would rather have him brought in and have be nothing than to sit on it and god forbid have it get worse.
A trick that one of our nurses taught us was to keep the nebs in the fridge. The cold neb can be soothing. It did help. I hope Seamus feels better soon! 
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Linda - Mom to Collin, former 30wkr, IUGR, Severe BPD, in NICU 9months (decannulated 8/03), g-tube (removed 9/10), Neurodevelopmental Delays (secondary to complex medical history),ADHD-Inattentive Type, Sensory Processing Disorder www.nicumama.com www.purplelotuswebsitedesign.com
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#3
11-25-2007, 10:11 PM
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So sorry to hear that Seamus is sick... nothing worse as a parent. Ever try just plain ol' vicks? I have heard to rub it on the bottom of kids feet, but haven't tried it w/ Ayden. ???? I wish I had more answers for you...
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Dawn  former 26 weeker -- 4/2006 -- trach, g-tube, nissen; came home 1/07 vented 24/7; Successfully decanned 8/8/2008 -  Follow decan at: http://sleepy-dogs.blogspot.com/
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#4
11-26-2007, 12:49 AM
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This is exactly why we are in the hospital now. Add to RAD the facts he has poor lung function from pulmonary hypertension and unrepared heart defects...He is on nebs every 2-4 hours and CPT. He was admitted with a lower respiratory infection. He tested faintly positive for the flu, but never got a fever. HIs doctors had to start him on steroids. I get the feeling this will be our course of action every time he gets a cold for a very long time.
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Rene, Mom to my Angel, Tommy. Born 9/25/06 at 33 weeks, with Single Ventricle Heart Defects and Cricopharyngeal Achalasia (Gtube dependant, poor swallow). Trached at 2 months for Severe Subglottic Stenosis. My little flirt died unexpectly 8/20/08 from complications from undiagnosed bronchopneumonia.  Forever, Tommy's Mommy http://www.musingsofaheartfamily.blogspot.com/
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#5
11-26-2007, 06:46 AM
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Hope that Seamus shakes that bug soon and has a good winter. Karen
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Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel. 
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#6
11-26-2007, 08:07 AM
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Have you tried using saline nebs? They can do wonders to loosen up lung junk and get it up and have no medicinal side effects. Deb
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Grateful thorns have roses 24 weeker now almost 11 years old and in third grade! trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08 [IMG] [IMG]
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#7
11-26-2007, 10:27 AM
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Saline nebs do work well. Particularly if I'm in between neb treatments. I also put them in the fridge.
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Linda - Mom to Collin, former 30wkr, IUGR, Severe BPD, in NICU 9months (decannulated 8/03), g-tube (removed 9/10), Neurodevelopmental Delays (secondary to complex medical history),ADHD-Inattentive Type, Sensory Processing Disorder www.nicumama.com www.purplelotuswebsitedesign.com
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#8
11-26-2007, 02:04 PM
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Has he been tested for colonized pseudominis? I get flare ups/ extra growth and get very congested. TOBI is the only thing that works. Could be allergies. I was getting really junky until I started Claritin. To manage my every day extreme junkiness, I use Pulmozyme and Xopenex. For asthma, Pulmicort
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