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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
07-13-2007, 08:39 PM
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Oh what fun....
The past 2 days have been so much fun..haha can u see the sarcasim lol. anyways Marqus was rushed to sick kids yesterday after he started chocking on a cookie and pices of it came out the trach. he was ok afterwards but they were still worried, so asked him to be in asap. Everything looked normal but needed to be overnight for observation. At first they were going to make us stay in the ER with no pulse Ox, or any monitoring, or a cool mist humidifier or anything like that.I Freaked, if i could have i would have kicked and screamed, but finaly they got him a room and all way cosure(sp) he had a bit to eat all went well but he had a bit of a cough when eating the crackers I gave him, but nothing panned from that. This Morning they sent us home and befor we made it out the head RT wanted to admit us again!! I guess whoever I told about the cracker never sent on the Msg. So now we are at home but it took alot for me to get here. hes on liquid diet all weekend and on Monday they are going to do a swollow test. Im so happy though cause from what i have learned about asperating, it can be verry bad, and Marqus was almost fine right after the episode. Ive never seen him turn blue befor quite like that but hey another thing added to my learning block... So on monday I hope i will find out what is going to be done, Im starting to think they want to do a feeding tube, even my nurse is thinking that. thank you all for ur ear, hope everyone is well
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Marqus,1 year, trached-stenosis,floppy throat, webbing, tracheomalacia-The happiest little boy you will ever see http://s166.photobucket.com/albums/u90/marqus06/  
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#2
07-13-2007, 09:03 PM
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Scary. I'm glad he is ok now and will be anxious to hear about the feeding study, but I'm shocked to hear that the ER at Sick Kids didn't put him on a sat monitor or have humidity for you. That is the total opposite of my experience there and we've been in the ER twice.
suzanne
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Suzanne Mom to: Berkeley (June 2002),Griffin (July 2004), and Parker (November 2006) My family blog: http://www.mylifewithboys.typepad.com Parker's LTP Blog: www.parkersplace.wordpress.com 
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#3
07-13-2007, 09:14 PM
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Sounds like our local er one time. the peds sections was being remodeled and we were put in the cardiac unit well bill and I almost killed some one. We had to show the rt how to set up the humidification right down to telling her what parts she needed. This was when adison was at the rehab when we got there the emt's didn't leaver her go bag with her all that was there was her extra trach. it took them 45min to get us something to suction her with.
I hope the swallow study goes well and gives you some answers.
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#4
07-14-2007, 08:31 AM
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Doesn't sound like fun. Glad things are better right now. Do you think they'll do a swallow study? Karen
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Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel. 
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#5
07-14-2007, 04:13 PM
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Glad he's home now. Hope the swallow study gives some good results. Pretty scary
Juliexx
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  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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#6
07-15-2007, 07:12 AM
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Swallow studies do tell a lot, i do hope it goes well. The cookie coming out the trach must have been very scary. uh, what do you do? I always wondered that when I give Jordan tastes. Can food get stuck in the trach & how do you get it out?
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  Cathy Mom to Justice 7/02 never stopping mad man, and Jordan 2/04,c.p. trach. Tracheomalacia, gj-tube, reflux w/nissen, seizures, spasticity.... & it's official the epilepsy dx. LOVES Sponge Bob, birthday party's,& misses school  http://jordanakapeanut.blogspot.com/
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#7
07-15-2007, 07:46 AM
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I hope that you get some answers for your little guy.
PS You should show us a big size pic of your new avitar. Marcus looks so cute. Tess
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Tess-mom to Abigail 9 yrs old. DX Central Congenital Hypoventilation Syndrome and has a pace maker. Abby was decannulated April 15, 2010. She now sleeps with a V-pap machine and mask. Also mom to a fiesty red head named Olivia who is 6. I am the happiest mommy right now, all is good.
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