Get this - the conclusion on Jacob's hearing by the audiologist - "Jacob is a mystery".
She said she has only seen one case like him before. Profound hearing loss in the left ear and a hearing aid unlikely to help. The right ear is the mystery. The ABR showed profound hearing loss, but when she took him into the "developmental/behavioural" room for a test while awake, he TOTALLY responded to the sounds with his right ear! This validated what I have thought all along, that he is hearing. She said he definitely has a lot of residual hearing in the right ear, yet is congested again - already and she thinks regardless of the fluid, he has moderate to severe hearing loss, but possibly even better.
She said he may also have something going on in the right ear called "audio dysynchronicity". In short, she said he definitely has a lot that we can work with on the right ear and with early intervention, etc. etc., he should be able to learn to speak and communicate orally, go to regular school, etc. etc.
She doesn't think a cochlear implant is the way to go, as a hearing aid should assist him in maximizing the hearing he has in the right ear. She doesn't want to fit him for a hearing aid in the left ear yet, until she knows what is definitely going on with his right ear.
In short, she said, "This is a confusing way of telling you this is good news." It was so wonderful and such a relief to see him consistently responding to sound in his right ear!
I will keep you posted.