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Pediatric Tracheostomies For parents and caregivers of children with tracheostomies.  Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support.

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Old 01-12-2007, 03:00 PM
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Kaylie Kaylie is offline
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Hi,
I have been trying to get my conference DVD since they were made, but still have not had any success. i have contacted Zoes mom a few different times, and i am not even sure at this point in time with all that has gone on , how long ago its beens. i do remember talking to Deb to see if she got hers, because she was like one of the last ones like me. I would really like to see Dr Cotton and here what he has to say..... so if anyone who has one can make me one i would greatly appreciate it...... thanks
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Old 01-12-2007, 09:56 PM
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I am in the same boat. I even sent Zoe's mom a check for the DVD and still haven't gotten one yet?? I think that was back in August. I would really have like to see Dr Cotton as well before Will's surgery!! Can anyone help us??
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Sabrina, mother to Will born a 24 weeker May 4, 2005. History of BPD, Trach August 2005, Gtube October 2005, ROP, Single Stage LTP 1/25/07 and trach free!!!! The happiest little boy who is the center of my world!!
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Old 01-13-2007, 09:37 AM
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I have sent a check also-
keep me posted I'd love a copy still, has anyone heard from Lora??
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Old 01-13-2007, 12:07 PM
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i also sent a check along time ago,and also many emails as well, but still never got it.my last emails were not replied too at all. the other emails that sent which were sometime back were answered and she said she sent it, but i never got it, so she said she would send another one, but it would take some time, and i completely understand,but it seems like a very long time now....were you guys checked cashed?
can someone else who has the dvd make one for all of us?
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Old 01-15-2007, 12:47 PM
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bump ........
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Old 01-16-2007, 07:47 AM
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I did finally get mine, but I havent been able to watch it yet! I will try to watch it this evening after Allison goes to bed and then I can send it on to someone else. PM your address and I can send it along. Deb
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24 weeker now almost 11 years old and in third grade!
trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08
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Old 01-16-2007, 09:36 AM
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If someone sends me one, I can make copies for anyone that wants it, no checks, no worries, and I can have it out to everyone in two days. I have the software and I have stacks of blank DVDs and I make it to the post office pretty frequently.

Or, if there's someone out there who has one who's tech-savvy or willing to try something new, you can post the files you have on my server and I can make copies from that; drop me a note and I can give you instructions and the username & password. Then, you don't need to send the disk. I'm sure the files are large, though, so you should have a high-speed connection and probably set it to copy overnight so it doesn't interfere with anything else you're doing.
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Milan - 10/01/04, 31 wk preemie due to maternal HELLP syndrome. Has challenges. DECANNED AUG 2006 and so far, so good with the nose breathing!
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Old 01-16-2007, 10:22 AM
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Kari - let me see if I can get a master disk from Lora and I'll get it to you. I son't know that I qualify as tech-savvy, but I do know how to get something to you server.
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