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Forum: Pediatric Tracheostomies 05-29-2012, 05:40 PM
Replies: 8
Views: 754
Posted By Yoanna
Wink swimming????

Okay so dont tell her dr, but last year we broke trach rules and took our daughter to the pool (although we did keep her in a princess floaty boat) lol. I was wondering if anyone knows of any device...
Forum: Pediatric Tracheostomies 02-19-2012, 07:18 PM
Replies: 5
Views: 428
Posted By Yoanna
Thanks for all your input guys! Its appreciated!...

Thanks for all your input guys! Its appreciated! Only 9 more days until we go back and check out her chords so hopefully swelling goes down and surgery works this time!:hug:
Forum: Pediatric Tracheostomies 02-15-2012, 02:10 PM
Replies: 5
Views: 428
Posted By Yoanna
Unhappy deccan halted :( swollen vocal chords?

So after they did fatemahs laryngoscopy and bronch, they noticed her vocal chords were severly swollen. Anyone knows what causes this? He said maybe a virus or that the granuloma above her chords was...
Forum: Pediatric Tracheostomies 02-08-2012, 09:58 PM
Replies: 16
Views: 681
Posted By Yoanna
Wink Janet, your in troy? Im in Windsor! We need to...

Janet, your in troy? Im in Windsor! We need to meet lol. Both your children got trachs due to prematurity complications and BPD? Glad to hear your first is trach-free! My daughter was preemie w/BPD...
Forum: Pediatric Tracheostomies 02-08-2012, 09:50 PM
Replies: 9
Views: 577
Posted By Yoanna
Talking Decannulation tomorrow!

Hey everyone, so long time no chat! With all fatemahs appointments and me going back to school full time I havent had much time to visit the board :(

Just thought I would drop a line and let you all...
Forum: Pediatric Tracheostomies 02-01-2012, 06:10 PM
Replies: 9
Views: 674
Posted By Yoanna
I know this is late in coming but maybe someone...

I know this is late in coming but maybe someone else could use advice too, you know know :) Anyway, I made a trach doll.... a doll from walmart, due some minor surgery to neck and stomach, add old...
Forum: Pediatric Tracheostomies 07-28-2011, 03:50 PM
Replies: 6
Views: 379
Posted By Yoanna
trach=gtube 4ever?

Hey everyone, ok so after my daughters brain surgery, she has no more apneas alhamdulillah and is off oxygen at night. (YAY no more O2!) Her ENT is ready to decan her as soon as her sleep test goes...
Forum: Pediatric Tracheostomies 07-14-2011, 08:45 PM
Replies: 8
Views: 481
Posted By Yoanna
DD had central sleep apnea suddenly out of...

DD had central sleep apnea suddenly out of nowhere and they did sleep studies after sleep studies and I told them finally "give her a brain MRI, if its central, something is causing it" and they...
Forum: Pediatric Tracheostomies 07-14-2011, 08:37 PM
Replies: 5
Views: 269
Posted By Yoanna
Talking DD has her first PM speaking valve!

Hey everyone, sorry we havent been here for a while, our daughter had surgery for a malignant liver tumour and cyst on her brainstem so we are home now, and recovered. and................ she got a...
Forum: Pediatric Tracheostomies 05-26-2011, 02:35 PM
Replies: 14
Views: 654
Posted By Yoanna
trach, cp... now cancer and cyst...

Hey guys,:cry: so we just found out through MRI after a greuling week in hospital in London that dd has hepatoblastoma (liver tumour..cancer) and a cyst on her brainstem. She will need 2...
Forum: Pediatric Tracheostomies 05-13-2011, 12:34 PM
Replies: 17
Views: 980
Posted By Yoanna
great place on youtube!

I use these all the time! They have important signs too like medicine, nurse, docotr, van, LOL. You can download them for free to your IPOD/IPHONE. Then you can take it with you to consult or teach...
Forum: Pediatric Tracheostomies 05-13-2011, 12:30 PM
Replies: 7
Views: 502
Posted By Yoanna
Unhappy no decan, vent instead?

Hey everyone, okay so I never EVER thought we would be here in this position... fatemah was suppose to go for her trach decannulation on June 8th. After a repeat sleep apnea test, her new...
Forum: Ventilator Kids 05-13-2011, 12:29 PM
Replies: 0
Views: 304
Posted By Yoanna
Unhappy no decan, vent instead?

Hey everyone, okay so I never EVER thought we would be here in this position... fatemah was suppose to go for her trach decannulation on June 8th. After a repeat sleep apnea test, her new...
Forum: Pediatric Tracheostomies 05-10-2011, 12:35 PM
Replies: 10
Views: 976
Posted By Yoanna
Wink I have a few things I could send out if you give...

I have a few things I could send out if you give me the address... also I will be in London tomorrow if you can get a ride there or something and can give you a box of nutren Jr with fibre and all...
Forum: Pediatric Tracheostomies 04-11-2011, 09:27 PM
Replies: 3
Views: 486
Posted By Yoanna
Thanks guys! I appreciate your help! It does make...

Thanks guys! I appreciate your help! It does make more sense now... :D :thumb:
Forum: Pediatric Tracheostomies 04-10-2011, 09:57 PM
Replies: 3
Views: 486
Posted By Yoanna
Unhappy Laryngectomy and decann?

Okay, is this what they do when a child gets decanned? I thought thats what her doctor told me, he was going to take a laser and get rid of the granulomas in her throught before the decann to give...
Forum: Pediatric Tracheostomies 04-10-2011, 09:53 PM
Replies: 21
Views: 1,189
Posted By Yoanna
The teacher can suction her? Because the teacher...

The teacher can suction her? Because the teacher is also an RN in her spare time or something right? Here, they will not let fatemah start at her preschool which is at the same Center where she gets...
Forum: Pediatric Tracheostomies 03-02-2011, 02:25 PM
Replies: 11
Views: 520
Posted By Yoanna
Its understandable that you would worry about his...

Its understandable that you would worry about his 02 especially post decan... im sure though that if they thought he needed it, they would leave it with you. Normally you are right,it would take a...
Forum: Pediatric Tracheostomies 03-02-2011, 12:25 PM
Replies: 2
Views: 327
Posted By Yoanna
:teddy: :fever: We are sending your lil guy "get...

:teddy: :fever: We are sending your lil guy "get better vibes" by fed ex. They should be there soon !!!! :hug:
Forum: Pediatric Tracheostomies 02-28-2011, 08:40 PM
Replies: 2
Views: 280
Posted By Yoanna
Question decan date june 8th! but can someone explain this pls?

We saw my daughters ENT in London and he told us we will have the decan on June 8th. At that time he will also do a laser for the granulation removeal, a bronchoscopy, and Laryngectomy (is that...
Forum: Pediatric Tracheostomies 02-11-2011, 07:19 PM
Replies: 3
Views: 698
Posted By Yoanna
Arrow "if it sounds like a duck....."

My daughter has been coughing today (she uses cuffless bivona trach) and she is making quacking sounds... i know i probably sounds nuts but that is what she sounds like! has anyone else ever...
Forum: Pediatric Tracheostomies 02-09-2011, 03:12 PM
Replies: 13
Views: 932
Posted By Yoanna
Hope Nadia does too! Good luck with the...

Hope Nadia does too! Good luck with the scope!:hug:
Forum: Pediatric Tracheostomies 02-09-2011, 03:10 PM
Replies: 13
Views: 932
Posted By Yoanna
Update: So I had to go for fatemahs rsv vaccine...

Update: So I had to go for fatemahs rsv vaccine today and saw her pediatrician. He suggested giving her saline in her nose and using a bulb syringe and then giving her benadryl before bed... he said...
Forum: Pediatric Tracheostomies 02-09-2011, 12:15 PM
Replies: 13
Views: 932
Posted By Yoanna
I just called her RT who brings us her supplies...

I just called her RT who brings us her supplies and she told me you are right and to go ahead and use ventolin right before the pulmicort. It hasnt worked yet though lol I am going to buy some honey...
Forum: Pediatric Tracheostomies 02-09-2011, 08:45 AM
Replies: 8
Views: 469
Posted By Yoanna
Spare time? The only spare time I have is when...

Spare time? The only spare time I have is when her night nurse comes(11pm-7am) and I sleep. So I guess that is what I do for me... sleep at night so im not cranky in the morning with a migraine:D
Showing results 1 to 25 of 79

 

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