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Forum: Pediatric Tracheostomies 06-03-2013, 04:19 PM
Replies: 11
Views: 827
Posted By EDodson
We have Kaiser as our primary and Medicaid as a...

We have Kaiser as our primary and Medicaid as a secondary. Very rarely do we get a bill for co-pays or deductibles. We do however typically have to pay our 30% (70/30) for any specialist that does...
Forum: Pediatric Tracheostomies 06-29-2012, 04:41 PM
Replies: 9
Views: 587
Posted By EDodson
Although my son is not in school and far from it,...

Although my son is not in school and far from it, I have many friends whose children are. In our county/state, the school provides a nurse but you dont lose your home care. So, the school nurse rides...
Forum: Pediatric Tracheostomies 06-25-2012, 08:03 PM
Replies: 5
Views: 913
Posted By EDodson
We do not use the Airvo but the HC series. From...

We do not use the Airvo but the HC series. From the time Rylan was born he has been on the temp 37c. We actually run into problems if we are not that warm. The only down fall we see is during the air...
Forum: Pediatric Tracheostomies 06-19-2012, 11:56 PM
Replies: 10
Views: 655
Posted By EDodson
Our Neurologist has used an EMG/NCS in the past...

Our Neurologist has used an EMG/NCS in the past (and is currently requesting another) to check the nerve and muscle responses from the brain. Rylan can not use all of his facial muscles/nerves so he...
Forum: Pediatric Tracheostomies 06-14-2012, 07:31 PM
Replies: 23
Views: 1,734
Posted By EDodson
Shauna - I was thinking the same thing. Although...

Shauna - I was thinking the same thing. Although I have never thought about it that in depth. I have 100% accepted the trach/vent world and know that it will never go away. I am okay with that and so...
Forum: Pediatric Tracheostomies 06-08-2012, 09:22 PM
Replies: 12
Views: 754
Posted By EDodson
In our case I don't at all believe the Prevacid...

In our case I don't at all believe the Prevacid is the cause for vomiting but I also don't believe it stops it. One thing I have come to find with the work I do with Trach/Vent parents is that our...
Forum: Pediatric Tracheostomies 05-17-2012, 10:29 AM
Replies: 7
Views: 617
Posted By EDodson
We always give Ry about 30cc of water half an...

We always give Ry about 30cc of water half an hour before meals. When he does begin having digestion issues (we have a lot) we will take 1 blenderized out during the day so he has about 4-1/2 hours...
Forum: Pediatric Tracheostomies 05-08-2012, 07:55 PM
Replies: 10
Views: 612
Posted By EDodson
We have one nurse who is from Jamaica and loves...

We have one nurse who is from Jamaica and loves Jamaican coffee so that's what we got her. Another one likes to knit and do crafty projects so we got her a gift card to Hobby Lobby. It did not cost...
Forum: Pediatric Tracheostomies 05-08-2012, 07:13 AM
Replies: 8
Views: 534
Posted By EDodson
We spoke about the risks for cancer but he said...

We spoke about the risks for cancer but he said the risks were not great enough for it to be justified to him. Rylan is also going to be circumcised and I know that will add to the pain. I think I am...
Forum: Pediatric Tracheostomies 05-04-2012, 08:42 AM
Replies: 8
Views: 534
Posted By EDodson
"Now onto recovery because he is not happy about...

"Now onto recovery because he is not happy about the pain from the testes :)"

I have just scheduled Rylan's surgery to have his testes brought down. I am a little apprehensive about the procedure...
Forum: Pediatric Tracheostomies 04-26-2012, 10:17 AM
Replies: 16
Views: 655
Posted By EDodson
Oh Susan, you and I always seems to be on the...

Oh Susan, you and I always seems to be on the same page. =) I can not help you feel any more comfortable with this decision but please know I am here. Have you found nurses for day shift?
Forum: Pediatric Tracheostomies 04-25-2012, 08:13 PM
Replies: 35
Views: 2,110
Posted By EDodson
Welcome to the boards! May 3rd I will be one year...

Welcome to the boards! May 3rd I will be one year into this journey and I remember where you are now as if it were yesterday. I promise you every nervous, paranoid, overwhelmed feeling you have now...
Forum: Ventilator Kids 04-25-2012, 09:56 AM
Replies: 2
Views: 862
Posted By EDodson
You are correct in they do not typically pace at...

You are correct in they do not typically pace at such a young age and to be honest, I'm not sure why Rylan would be any different. These are all things I will speak with the specialist about. Even if...
Forum: Ventilator Kids 04-20-2012, 09:41 AM
Replies: 2
Views: 862
Posted By EDodson
Diaphragmatic Pacing

I am looking for someone whose child has had Diaphragmatic pacing. Rylan has bilateral paralysis of the diaphragm with unknown cause. Based on his history he is a candidate but there are still a lot...
Forum: Pediatric Tracheostomies 04-11-2012, 08:27 AM
Replies: 9
Views: 547
Posted By EDodson
That is such great news! I am convinced the...

That is such great news! I am convinced the reason Rylan throws up so much is because of his G tube so I am happy to hear you all have the opposite results! I will pray that this continues for you...
Forum: Pediatric Tracheostomies 04-10-2012, 03:38 PM
Replies: 12
Views: 502
Posted By EDodson
I believe it makes a big difference. When Rylan...

I believe it makes a big difference. When Rylan was originally trached he had a 4.0 cuffed but deflated. The first time I ever heard him cry is when we changed him to a 4.0 uncuffed. That was only a...
Forum: Pediatric Tracheostomies 03-29-2012, 09:09 AM
Replies: 26
Views: 1,731
Posted By EDodson
Oh SSI - it make no sense but unfortunately...

Oh SSI - it make no sense but unfortunately that's the way it works. SSI is 100% based on income and resources. When a child is in a hospital long term or is a premi it gives a little more...
Forum: Pediatric Tracheostomies 03-25-2012, 08:35 AM
Replies: 6
Views: 728
Posted By EDodson
I will try to reach her today. Her son is vent...

I will try to reach her today. Her son is vent dependent but they are checking into the ICU next month for a major vent wean. She really wants to get him on CPAP. He had spent time off the vent...
Forum: Pediatric Tracheostomies 03-24-2012, 09:22 PM
Replies: 6
Views: 728
Posted By EDodson
I have a very good friend who son was diagnosed...

I have a very good friend who son was diagnosed at 2 months and is almost a year now. She is not on this site but I can certainly let her know there is someone who would like to speak with her if you...
Forum: Pediatric Tracheostomies 02-15-2012, 10:40 PM
Replies: 8
Views: 575
Posted By EDodson
Quick update - Monday Rylan was admitted to the...

Quick update - Monday Rylan was admitted to the TICU after his heart rate dropped into the 40s. He had his PH study that showed only 7 very small episodes of reflux and none of them coincided with...
Forum: Pediatric Tracheostomies 02-08-2012, 04:20 PM
Replies: 8
Views: 575
Posted By EDodson
Thanks guys! We are not on any meds that lower...

Thanks guys! We are not on any meds that lower the heart rate, actually just the opposite. They just took him off albuterol and put him on xopenex. Susan - because Rylan's diaphragm does not work at...
Forum: Pediatric Tracheostomies 02-06-2012, 07:16 PM
Replies: 8
Views: 575
Posted By EDodson
Low Heart Rate & Reflux

Over the past two months Rylan's heart rate has been dropping into the 60s while sleeping. (He is only 9 months) It started out just jumping around all night long but is progressively getting longer....
Forum: Pediatric Tracheostomies 02-05-2012, 10:23 AM
Replies: 10
Views: 633
Posted By EDodson
We wash them daily with soap and hot water then...

We wash them daily with soap and hot water then hang to dry. Once to twice a week we let them soak in a vinegar/water solution. This helps to kill any extra germs that are hanging around and get rid...
Forum: Pediatric Tracheostomies 02-01-2012, 02:52 PM
Replies: 16
Views: 720
Posted By EDodson
Rylan has his own room because I felt like he...

Rylan has his own room because I felt like he really needed his own space as he grows. We also have a nine year old who I did not want to feel like he had to be quiet in the main area of the house....
Forum: Pediatric Tracheostomies 02-01-2012, 02:39 PM
Replies: 9
Views: 1,163
Posted By EDodson
I also have a nine month old who is becoming more...

I also have a nine month old who is becoming more active by the day. We try to keep the heater below or at the same height as Rylan. This keeps the water from draining down towards him. My husband...
Showing results 1 to 25 of 30

 

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