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kelgreen kelgreen is offline
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Last Activity: 12-20-2008 08:04 PM 

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Bobby ~ born 11/28/05 w/Treacher Collins Syndrome
G-tube, reflux, BAHA (bone anchored hearing aid w/a softband), cleft repair
3rd attempt for Jaw distraction surgery successful
airway is 85-100% open!
sleep study all good..
DECAN JULY 15TH!!!
Naked Neck club member!
Finally home w/us since he was 7 months old.
www.caringbridge.org/visit/bobby

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Join Date: 03-07-2006
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Date of Birth:
March 16, 1975
Age:
38
Location:
LI, NY
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