oliviasmom
09-18-2006, 02:51 PM
O.k this will be a long one.. Well As you all might know, Our Olivia is still in the NICU and it has been for 11 months as of yesterday.. At the begining, She was on the Cpap, then they lied to us and said that to get more nursing hours we should place her on the Vent with a Rate of 6 bpm.. So we did and now my child doesn't want to let it go.. So She finally got used to the Vent after like 3 months and we are due to come home Next Tuesday.. Now Here they go, when we got trained for the trach the docs were saying that two poeple must be trained before she can come home.. So my mom had came down because of the surgery, then she left, but she started the training. Me and hubby finished our trainig 3 months ago and today i get a call stating that My mom needs to come back to Arizona from NewJersey to get finish her training. I went off. I said No, because one my mom doesn't live just down the street. Plus they stated that only two need to be trained.. Then the went into this whole frenzey that we might want to have a break.. O.k. That might be true but when you are a parent and you can't get a break then you just can't get a break.. Especially when you have been waiting on your child for damb near 2 years, that was our break.. SO it seems like now they are going to give us the run around.. They keep saying that when you have a baby with a trach that someone needs to be watching your child at all times. But there has been plenty of times I have came in to be w/Livia and she was desating or her nurse was at lunch and there was only 1 nurse in a pod of 10 babies so don't give me that sh*t. We don't know if it's because we are young that they fill we are not able to do this, or what but they just discharged one of our pod members who has a trach and they are older and no of this was brought up to them.. So my questions is I know it is going to be hard, but how do you guys do it..We will have only nite time nursing for 8 hrs.. Then we are on our own.. How do you do your daily activities, Grocery(sp) shopping, doc appts, anything with you and the baby.. Is is as hard as they are making it seem to us?. Please gives us any advice, To let us know how it would be... Sorry so long....