How big...

[tprocha]

Do I need a table to set it on or are they on stands? I'm trying to space plan for when Riley comes home. Thank you!

[lovemymak]

The size of the vent depends on the model. Â*Do you know which one she will be coming home on? Â*Here are some of the most common vents. Â*http://www.ventilatordistributor.com/pages/products.htm Â*The way it is set up at your home also depends on your home supply company. Â*We wanted to have the attachment so we could put it on the same pole as the feeding pump, but they would only supply us with a table top stand to hold it up. Â*It takes up about the size of the top of a tv tray. Â*The link above should also give specifications about size. Â*You will also need room for the heated moisture that attaches to the vent. Â*I hope this information helps plan everything. Â*I hope Riley can come home soon! Â*
http://www.tracheostomy.com/iB_html/non-cgi/emoticons/pray.gif Â*http://www.tracheostomy.com/iB_html/non-cgi/emoticons/pray.gif

[Livi's_mama]

We bought this cart. We have the vent on the top, ambu bag and spare items in the top tray, pulse ox & vent box plug in in the second basket, the neb & feeding pump in the bottom basket, then the humidifier is hooked on the front and the feeding bag hangs on the side.

It's easy to carry Livi and pull her cart along.

Our insurance will only pay for the table stand, so we had to make due.

Kitchen cart (http://www.walmart.com/catalog/product.do?product_id=1756999)

[Livi's_mama]

Livi's cart (http://i44.photobucket.com/albums/f31/pauleons/Imag0278.jpg)

[Dylansmom]

Dylan is on the LTV 950. Which has a stand that you can get. It has like five little wheels/base then the vent slides on the top. I don't have a picture but if you PM me I will try to get one. I have dylans feeding pump, vent, heater/humdifier all on this stand. It has an area for oxygen tank also. I do not have his oxcimeter on the stand b/c I keep it next to my bed, but everything else is all together, and moves easily.

PS- I started out with a regular kicthen cart, and the vent table stand. From my experience the stand with wheels (around 4 ft. tall, maybe a 1 ft wide) is easlier to move around and is less bulky.

Brittany
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[tprocha]

Resp. therapy mentioned she'll probably go home with a T-bird? Does that sound right? I've been trying to find a pic online but haven't yet. I think we are going to buy a crib from penney's that has a changing table attached on one end. There are shelves and drawers too. Thanks for the info, I appreciate it! http://www.tracheostomy.com/iB_html/non-cgi/emoticons/thumb.gif

[Melisande]

Let me guess.....are you working with Apria?


haha

No offense to the T-bird. Â*It is a very reliable vent, however it is BIG. Â*Yes, it is technically portable, but so is a RV and we're not strapping that to a stand and toting it through the mall. Â*By big, I mean it weighs between 35 - 40 lbs.

Most parents of kids with vents use the LTV (I think the latest model is the 1000). Â*It's a vent that's about the size of a laptop computer. Â*MUCH more portable than a large, heavy box. Â*We use the Newport HT50, which weighs about 12 lbs. Â*It's not FDA approved for kids under 50lbs, so we had to get special approval, but I highly recommend it. Â* It has a 10 -12 hour internal battery and was field tested in combat, so it's very rugged. Â*We had the t-bird when we came home and only traveled outside of our home once in a year because it was just too much. Â*If your daughter is on the vent 24-7, I'd insist on something smaller. Â*Donovan only needs his at night, so we have been safe without taking everywhere if we aren't staying the night.

Keep us posted on how it goes. Â*You might try posting on the regular board because there's just more traffic there. http://www.tracheostomy.com/iB_html/non-cgi/emoticons/inlove.gif

[Melisande]

Oh, for a stand, we got a restaurant grade waiters cart, solid stainless steel. It cost a bit more, but it's been great and it's on wheels. http://www.tracheostomy.com/iB_html/non-cgi/emoticons/thumb.gif

[Mom2TwinsPlus1]

We just use the top of a dresser for now but the engineering dept of OU is making a stand and we will have it at Christmas, its custom made and will be able to fold the handle down and put it in the floor board of the car that way we can just roll it and her outside and load them up.

Here is a picture, it was a bit messy that day but you get the idea on the size and our set up. Her bed is just to the right and her suction machine is UNDER the bed so we dont have to look at all the gunk and you can flip it on with your foot really easy By the way the vent is the LTV 950


http://i110.photobucket.com/albums/n119/EmmaBlog/machines1.jpg

[Livi's_mama]

So does Emma stay in that one little area all day long?

We couldn't get the vent stand, so I'm glad we got the cart. we are able to move her all over upstairs, then when we bring her downstairs, daddy just carries it all right now the steps.

As for stroller I highly recommend the Graco Metrolite (we got the Lindsay Pink one)

I've been thru 5 strollers now and I love this one! (even 2 double strollers!)

I set the suction machine in front, then the vent cords beside them (we don't carry the big battery we just plug her in) then I can lay the vent flat on the open basket flap and set the pulse ox right on top of it. Then I have a small rolling suitcase with her "diaper bag materials", nebulizer, food, etc.

Works like a charm.

(Kid karts are 3K and DH doesn't want one period)



http://i44.photobucket.com/albums/f31/pauleons/pinkstroller.jpg

[Mom2TwinsPlus1]

Quote[/b] ]So does Emma stay in that one little area all day long?


No, when Emma isnt in her bed we use her tiger cart or we hold her on the couch or chair. She is up in her tiger cart about 8 hours a day per her PT request. Also spends about an hour a day in her stander. Her tiger doesnt fit in the bathroom but it does fit every where else and she has no need to be going in the potty anyway! She isnt in the cart 8 hours straight but a couple of hours at a time. I love the tiger cart and since Emma has no muscle control and is so inactive its a blessing to have to get her positioned. She has the special tomato car seat and we are waiting for the base to get here that will turn it into a chair for indoors. Then we will just use the cart they are making for her or set the vent on the floor next to her.

[Mom2TwinsPlus1]

Emma in her chair, we dont normally have the feeding pump with us but did that day because it was so hot and I wanted to give her a cont. drip of water We have knee blockers for her chair now but she hasnt had the chance to try them yet since she is in the hospital. Sorry for pic size, I know its big, didnt have time to resize.
http://i110.photobucket.com/albums/n119/EmmaBlog/walk3.jpg

We really dont have much choice but to use the tiger, since Emma has terrible contractors she is too hard to fit in a reg. stroller.

[Dylansmom]

Quote[/b] (tprocha @ Aug. 15 2006,13:42)]Resp. therapy mentioned she'll probably go home with a T-bird? Does that sound right? I've been trying to find a pic online but haven't yet. I think we are going to buy a crib from penney's that has a changing table attached on one end. There are shelves and drawers too. Thanks for the info, I appreciate it! ?? http://www.tracheostomy.com/iB_html/non-cgi/emoticons/thumb.gif
[QUOTE]Resp. therapy mentioned she'll probably go home with a T-bird?

That is a vent....a huge pain but it works. Dylan had to switch from the LTV to the T-bird when he was 6 months old. He would always go into resp. distress with the LTV after the third day of being on it. (that was 4 years ago and he was less than the recommended weight 22lbs). ??(He has been back on the LTV for a little over a year now).

We has the T-bird for about a year maybe a little longer. It is a pain, but did not stop us from doing anything. Dylan has always went everyhwere with me... to the grocery store with me, shopping, I take him to the library weekly.... so it is doable just harder. For the T-bird I would recommend getting a double stroller or a wagon for transportion, single strollers are not very pratcial for the T-bird but do okay for the LTV.

**Just a peice of advice, the T-bird's "legs"/ 4 little prongs get stuck in the grocery chart, and they not very giving when trying to get them out!! http://www.tracheostomy.com/iB_html/non-cgi/emoticons/smile.gif --I took Dylan to Mejier's had him in in kids seat, vent in the basket part, grocery's loaded all over the place....Well after I had everything unloaded and went to get the vent out, it was STUCK!! Not moving and not coming out. After like 30 min. one of the workers told me she would stay with Dylan so I could go back in and just get a new one (Ya, a new T-bird vent. from Meijier's.....) I tried to expalin it to her that the grocery store does not carry home vents and it had to come out!! ??---It finally did, but I started laying a blanket under the vent when I put it in the cart from that point forwards!! http://www.tracheostomy.com/iB_html/non-cgi/emoticons/smile.gif

If you would like any pictures just let me know, I have him with his vent probably in every type of setting.

PS- I don't know how old your child is, but when he was in his infant car seat I think the wagon worked the best. It fit very nicely with the T-Bird side-by-side.

Sorry so long-Brittany
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[tprocha]

Thanks so much for the pictures and information! We will be working with Children's Home healthcare for everything (part of a larger network that includes the hospital). They gave us a list of stuff and said we would get a home vent and a portable one. The PT department is gifting a kid's cart to us that includes a vent tray. It was donated back by a family no longer needing it and is in great shape. We're really hoping she won't need the vent for more than a year or two but realize she may need it for a while. Because of the size of her defect she has only about a 1/3 of a left lung and only about 80% of her right lung functions well.

I'm so glad I've found this board, thanks!

[Livi's_mama]

Awwww look at Miss Emma!

She looks a lot like Livi!

[T-bone]

Abby uses the LTV 950. Looks the same as Emmas. Abby only needs her vent at night, so we have a microwave cart. We bought it at IKEA. We keep her vent, suction machine, ambu bag and all of the other supplies right there. The LTV is very portable. It is about the size of a lap top and weighs about 12 pounds or so. I would really try top get one of these if you are able. It will be so much easier for your family.
Good luck,
Teresa

[zachgram]

When Zach came home we went to a restaurant supply place as per caseworker's suggestion and bought a three-shelved supply cart on wheels. I honestly don't know what they'd do without it. His vent is about 18" by 12" (just a guess--that may be too big), but, honestly, it's not the vent that takes up so much room, it's all the other machines, gadgets, and other such paraphrenalia (sp?)! http://www.tracheostomy.com/iB_html/non-cgi/emoticons/vent.gif
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