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Madisyn's Mom
01-05-2006, 05:22 PM
Well, we went to the trach clinic today and had another scope done of Madisyn's vocal cords. We were told if her cords were still red and irritated that we may have to do the Nissen Fundo on her and put a feeding tube in. We have been on our new regimen of reflux meds for 3 months now.
Well, he did the scope, and much to our surprise, her cords were still slightly red and irritated, but there was no swelling. Even better news is that her right vocal cord is working completely on its own now! http://www.tracheostomy.com/iB_html/non-cgi/emoticons/biggrin.gif He said we need to work with her to teach her that she can breathe through her nose and mouth. We do this by putting her speaking valve on. She only tolerates it for a few seconds now because she panics and feels like she can't breathe.
So, for now, no feeding tube and we are looking at possible decannulation if we can get her to start breathing through her nose and mouth.

LeslieML
01-05-2006, 05:25 PM
that is awesome news!!

alissafaith's mom
01-05-2006, 05:29 PM
Very happy for you guys yeah go mddie hope you are trach free soon!
mandi

Jen3
01-05-2006, 06:27 PM
Yeah! Isn't it great to have good things start to happen when you least expect it?!?!

Congrats and I will keep her in my thoughts and prayers that she learns to become a nose breather!!

Jen

Adam's Mommy
01-05-2006, 06:40 PM
Wonderful news! The speaking valve is like that for everyone in the beginning. With Adam, we started 3-4 times a day just for a few seconds at a time. Eventually it got longer and longer...just like weening from the vent, weening from oxygen, etc. Man, this child has taught me patience!!
Congrats!

T-bone
01-05-2006, 06:43 PM
YAHOOOOO!!!!! Wonderful news!!!

Teresa
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sandra
01-05-2006, 09:37 PM
That is really wonderful news. Cause to http://www.tracheostomy.com/iB_html/non-cgi/emoticons/partytime.gif http://www.tracheostomy.com/iB_html/non-cgi/emoticons/partytime.gif !

Ann
01-06-2006, 01:59 AM
Great news! Good luck with the passy.

joeysmom
01-06-2006, 08:03 AM
What a gift. Wonderful news.

Jodi

LKN
01-06-2006, 08:31 AM
Congratualtions on your excellent news!!

scm
01-06-2006, 09:11 AM
that is excellent!! I am so happy for you guys http://www.tracheostomy.com/iB_html/non-cgi/emoticons/biggrin.gif
christina

Whitney
01-06-2006, 07:04 PM
That's great news! I hope things keep getting better http://www.tracheostomy.com/iB_html/non-cgi/emoticons/biggrin.gif