fundoplication

[cariaad]

HI I was just wondering how other kids who have had the fundo. done are doing with it? Alli is able to throw up some even tho they said she wouldn't be able to. She has horrible bouts of gas after feedings, which require venting the g tube. When we do this she always needs suctioned at the same time! Very frustrating, I only have 2 hands. Anyway, I just wanted to know if anyone else has seen a tie to increased suctioning during gas, or any other insights about the fundo as related to the trach. Thanks, Deb

PS Alli started on Human Growth Hormone yesterday. We are hoping to see some increase soon...

[Gretchen(Celia's mom)]

My daughter's fundo isn't like they said either. They said that she would never be able to throw up. Boy did I learn that they were full of it. She can get things up pretty good if you ask me. As for the connection between the secretions and gas, I've never personally had any problems with it. With my daughter I've learned that weird or unexplainable things happen all the time. Good luck. Gretchen(Celia's mom)

[Luke's parents]

We, too, have all of those problems! Luke has ALOT of gas, gagging, & coughing during a tube feeding. It is SOOOOO frustrating. I would love to find a cure. He has recently been put on zantac to reduce the acidity in his stomach & so far I see no improvements. (he's been taking it about 3 weeks). I hope somebody out there has an answer!

[cariaad]

Rose, Alli's formula is called Compleat Pediatric it is a "blenderized Tube Feeding" formula made from meats and vegetables. I asked the ped about this once and he never gave me an answer so I will put it on my list for the next visit. (It is Lactose free). We use a Fisher Price children's chair so Alli can be in a semi-reclining position during tube feeding. It has the advantage that she can't decide she's done and roll away like she tried to do when we used the bed and a pillow to elevate her. Our EI nurse says it's an ideal position...She gets 4 1/2 oz at a feeding, so I have to refill the bolus tube (it says it holds 2 oz but I have my doubts)LOL I hold the tube fairly low so that it goes in more slowly-it's about a 15-20 minute thing on a good day. Some days for some reason it runs in faster and other days it barely creeps down the tube. We used the small tube that would have hooked to the overnight feeding bag. When we vent for gas we use the big tube, and she can shoot her stomach contents all the way out the top sometimes. After a feeding we usually sit in the rocker and she will stretch out like a cat and arch her back a little . The EI nurse says she is doing this to raise her diaphram (sp) and give her a less full feeling in her stomach. She can sometimes actually throw up with the gas (if I don't see her gagging soon enough) but has bnever been able to just burp (which I think would solve all problems--no one ever pointed out to dumb me that she wouldn't be able to burp). So, any suggestions? Thanks and sorry so long http://www.twinEnterprises.com/iB_html/non-cgi/emoticons/smile.gif