PDA

View Full Version : Ok, we have a "next step"


Triciasmom
01-10-2005, 10:16 AM
We have managed to find ourselves STUFFED into an over crowded schedule for an airway clinic appointment on Thursday. Our Dr seems to think that maybe a bit of laser surgery to remove some tissue might work to get us the needed space in Tricia's airway. He says that we only need 1-2 mm more, but he has been saying that for about 2 years (ack).

As part of this next round of surgery, we will also be upsizing Patricia's trach back to a 4.0. We downsized in October anticipating decann...which didn't happen. We were at a 4.5, but I am not sure we will go back that far. I don't know how quickly this next round will progress, but I believe he might preform another observation bronc before scheudling the actual laser work. Needless to say, I am not "holding my breath" for this to move quickly.

I will keep you all posted on what happens next. Thanks for your support.

Godspeed

Clare

sandra
01-10-2005, 07:00 PM
I hope all goes well. You deserve some good news and to move forward. Looking forward to hearing how it all goes.

Whitney
01-10-2005, 07:28 PM
Clare

I am glad you have another "plan" and destination to focus upon. Its hard when you don't have anything mapped out. I am amazed at your strength and determination. Tricia is very blessed to have you!! Stay strong and hopefully this will be the beginning of the end...

Whitney

Carriestockmal
01-10-2005, 10:11 PM
I'll be thinking good thought for you!!

sbpully
01-10-2005, 10:11 PM
Great news!

Keep us all posted.

LeslieML
01-11-2005, 08:33 AM
Please let us know what happens, tell Tricia we are pulling for her down in Pensacola!!

hcs_mom
01-11-2005, 10:23 AM
Clare,

We will certainly remember you and Patricia (and your whole family) in our prayers. Whitney is right...your strength and determination are admirable!

Please just know that we are praying for good results from the lasering and that THIS will be the year that Patricia will reach decannulation.

Jennie

Ann
01-11-2005, 10:44 AM
Clare - I'm glad you have a plan - what is this now. . . Plan "E"!! Â*When I think of you and Patricia and the journey you've had these last few years, I think of "Finding Nemo" and the phrase Â*. . . "Just keep swimming, just keep swimming". Â*

Hang in there and "just keep swimming".
http://www.tracheostomy.com/iB_html/non-cgi/emoticons/inlove.gif
Ann

Sara's Mom
01-11-2005, 01:09 PM
Good luck! I truly hope this is the step that gets Tricia where she is supposed to be...although I imagine there are many times you wonder if these "next steps" just have you walking in a circle. We'll all be sending our best wishes to your family. I know how hard this has been on Tricia.

Erin

Alethia
01-12-2005, 01:47 AM
I hope you all get the break you deserve! We have to learn to be so patient, don't we? It's a nightmare.

Love,

Kate