MyAirvo Q- Water Use & Temp

[Ainsley's Mom]

I'm starting to wonder if our new MyAirvo is defective. We are the first in our state to try it so calling the DME won't help. I felt like it is too warm, and as I said in my other post, the temperature is not adjustable. The thing is using 1/2 a hanging bag of water every night. For those who have this machine, is that normal? It's just SO much more than our HC-500 used. TIA.

[Felix's Mom]

Yes, it's set at 37 and it can't be changed. It's definitely different but I assure you that it's better! It's the same temperature that our lungs are supposed to be. We leave ours on all day as he's still young and naps all the time and the Airvo will go through 1000ml in a day. It seems like a lot of humidity but don't forget that it's a large leak out of the front and the water droplets are fine not large so it seems less invasive and it's not drowning your child with humidity!

[Ainsley's Mom]

Yes, it's set at 37 and it can't be changed. It's definitely different but I assure you that it's better! It's the same temperature that our lungs are supposed to be. We leave ours on all day as he's still young and naps all the time and the Airvo will go through 1000ml in a day. It seems like a lot of humidity but don't forget that it's a large leak out of the front and the water droplets are fine not large so it seems less invasive and it's not drowning your child with humidity!

Thanks. It's good to know that indeed they do use that much water. It's interesting, but I feel like Ainsley isn't as humidified as she was with the HC-500. But it hasn't been long enough for me to judge the effect. Maybe it's a good thing. I always wondered if the HC-500 was "too much". It just seems odd that for as wet as the HC-500 was, it used a fraction of the water that the MyAirvo is using. One bag used to last us about a week. We are using 4 times as much water.

[Felix's Mom]

Are you liking any of he benefits? Have you gotten used to the silence?!

[Ainsley's Mom]

Are you liking any of he benefits? Have you gotten used to the silence?!

After five years of listening to that compressor I don't know how long it might take for me to get used to this thing! I keep looking at it wondering if it's working it's so quiet. Actually it's harder to ignore Ainsley's every little move. I think we will eventually get used to the silence and it will be heavenly. Already I love it, but it still feels weird. Maybe it's some form of PTSD. :geek:

Actually the other thing is that she isn't needing hardly any suctioning. I have to wonder if we weren't just pumping volumes of water into her lungs before (and basically creating secretions). Dry isn't good, but there are NO secretions. I'm kind of waiting for the other shoe to drop, and for her to end up with some thick secretions, or lung problems but there is no sign of anything like that.