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View Full Version : Erythromycin weaning?


jennymclelland
02-24-2012, 09:34 PM
I should call my doctor and ask, but I don't feel like bugging him. I would if it were a weekday, but this isn't a seven o'clock on Friday night question.

James was a puker for the first few months. He got put on the whole big list of anti-GERD medications, and I squawked and got him off most of them before he discharged. Our new pediatrician in Fresno is very reasonable, and his puking is pretty much resolved. The new pediatrician is a refreshing counterpoint to all the hospital specialists. They're all very good, but the pediatrician treats him like a normal baby who happens to have a trach, rather than a sick baby who needs lots of drugs.

My theory is that he didn't have a puking problem, he had a "laying alone in his crib crying and coughing for so long that he made himself puke" problem. That theory is supported by the fact that now that he's home, and we pick him up instead of leaving him alone in his crib crying on his back like a stranded turtle, he doesn't puke anymore.

The last two anti-GERD medications he's on are Zantac (2ml 2x day)and Erythromycin (1.3ml 3x day). I'm cool with the Zantac, because if he happens to spit up, at least the spit up will be less irritating to his airway. The erythromycin is a stupid annoying pink liquid that expires every ten days. The pediatrician is fine with d/c ing the erythromycin eventually, he just didn't want to pull him off too many at once.

We live in the middle of nowhere, and we use the stupid pharmacy in our little town. I went to pick up his erythromycin today, and they said it was out of stock. It was almost five, so it was too late to haul into town and get it. Now the stupid little pharmacy is closed for the weekend.

My plan is to go the weekend without it and see what happens. If he continues pooping normally and not puking, I'll call the doctor on Monday and ask him to write a d/c notice for the home nurses (we have no weekend nurses).

Is that a reasonable plan? Is erythromycin one that we're supposed to wean him off of slowly? It's just GI motility, right?

Felix's Mom
02-25-2012, 05:53 AM
I'm not sure about the medication, but my son is also a little bit pukey. If he's left crying and coughing it's an absolute given that he's going to throw up!

Sweet Harrison's mommy
02-25-2012, 06:43 AM
Harrison was on erithro for a while and we just stopped cold turkey...no weaning. That beings said, it did not alleviate any of his symptoms during the period of time that he was taking it, so it didn't worry me to stop it without weaning first. I think you have a reasonable plan, though. See how the weekend goes and next week (It could take a little while to see the full effects of not being on it) and go from there!

jennymclelland
02-25-2012, 08:46 AM
He was on erythromycin from the very beginning, even before the G-J feeding and continuous bile drain. If he was on a bunch of anti-GERD drugs BEFORE the G-J feeds, but it was still necessary to put him on G-J feeds, then doesn't that mean the drugs didn't work?

My logic says chart inertia. Once complex kids get on a drug, it takes an act of congress to get them off it.

And he just pooped while I was typing this, so I say his GI tract is sufficiently motile.

Caleb'sMom
02-25-2012, 10:13 AM
we weaned Caleb from it...but if you stop it cold turkey and there are no issues than who cares! good luck!

sofiasmom
02-27-2012, 02:31 PM
Sofia is on e-mycin. My understanding is that they can grow out of that dose. It happens pretty fast when they are young. If the doc doesn't change the dosage, you will end up weaning him.

That said, there is another formulation of E-mycin called Eryped which expires every 30 days. It is 400mg per 5ml. Sofia is on this one because our insurance doesn't cover the pink 200mg per 5ml. The 400 may be a better option for you.