Heather Trotter
06-01-2002, 12:10 AM
The last few times I have been to the ENT clinic have really depressed me. I have to drive an hour and half to get to Morgan's appointments just for them to tell me nothing. They haven't checked her the last couple of times. This past time I drove and hour and half waited in the waiting room another hour for them to tell me that they were just going to follow her. That she was no were near being decannulated. My worry is that she never will be. http://www.twinEnterprises.com/iB_html/non-cgi/emoticons/sad.gif
When Morgan got trached when she was just four months old. They told me she had severe tracheamalacia 9/10 collapsing and I had already known about the reflux and the laryngomalacia since she was a month old along with the tracheamalacia which I was told at a month old wasn't that bad even though she had a couple episodes were she stopped breathing and had to be vented. They would blame it on something else. Virus, reflux ect...........
Anyway, surgery was a couple hrs after the broncoscopy due to a severe apnea spell (we almost lost her). They told me she would have the trach at least two years. Then they told me two to four years and know they don't know. They just tell me they think she will grow out of it, it will just take some time. She hasn't shown any improvement since she was trached and it makes me worried. I try to keep my hopes up but, sometimes I feel like she may never grow out of it. Then I feel depressed because it shouldn't matter as long as she has a good life and is happy.
I was just wondering if anyone else out there has the same situation were there has been no improvements and they are in the dark as to what is going on with there childs future? Has there been anyone out there who had a child who never got better with a trach due to tracheamalacia and will wear a trach for life? http://www.twinEnterprises.com/iB_html/non-cgi/emoticons/sad.gif http://www.twinEnterprises.com/iB_html/non-cgi/emoticons/confused.gif http://www.twinEnterprises.com/iB_html/non-cgi/emoticons/sad.gif http://www.twinEnterprises.com/iB_html/non-cgi/emoticons/confused.gif http://www.twinEnterprises.com/iB_html/non-cgi/emoticons/sad.gif
When Morgan got trached when she was just four months old. They told me she had severe tracheamalacia 9/10 collapsing and I had already known about the reflux and the laryngomalacia since she was a month old along with the tracheamalacia which I was told at a month old wasn't that bad even though she had a couple episodes were she stopped breathing and had to be vented. They would blame it on something else. Virus, reflux ect...........
Anyway, surgery was a couple hrs after the broncoscopy due to a severe apnea spell (we almost lost her). They told me she would have the trach at least two years. Then they told me two to four years and know they don't know. They just tell me they think she will grow out of it, it will just take some time. She hasn't shown any improvement since she was trached and it makes me worried. I try to keep my hopes up but, sometimes I feel like she may never grow out of it. Then I feel depressed because it shouldn't matter as long as she has a good life and is happy.
I was just wondering if anyone else out there has the same situation were there has been no improvements and they are in the dark as to what is going on with there childs future? Has there been anyone out there who had a child who never got better with a trach due to tracheamalacia and will wear a trach for life? http://www.twinEnterprises.com/iB_html/non-cgi/emoticons/sad.gif http://www.twinEnterprises.com/iB_html/non-cgi/emoticons/confused.gif http://www.twinEnterprises.com/iB_html/non-cgi/emoticons/sad.gif http://www.twinEnterprises.com/iB_html/non-cgi/emoticons/confused.gif http://www.twinEnterprises.com/iB_html/non-cgi/emoticons/sad.gif