05-24-2002, 08:19 PM
I am needing some advice on my daughter's problem that I believe will stop her chances of being decannulated next week. She has a psychological thing about having the trach to breathe. I believe her airway is ready (hopefully) but that she is not. When we do "trial runs" at home, she does fine; breathes with no noise and no retractions until she realizes the trach is not there. Then she panics. I have no idea what to do to calm her down. How do you explain anything to an 8 month old? I have decided not to get my hopes up this time. It is too hard that way. Maybe she just needs time to mature enough for me to tell her she doesn't need the trach to breathe.