View Full Version : Alcaligenes xylosoxidans trach bacteria

01-24-2010, 11:14 AM
Wondering if anyone has had their child become colonized with this bacteria? It is gram negative like psuedemonas and is a natural bacteria in our environment. Like Psuedo it can overgrow and cause problems which is what we just experienced. It does not respond to Tobi nebs or cipro. Only IV antibiotics - two at once are needed to treat it also. It was very hard to identify in the lab. It took 7 days of growth from her culture to ID it. It wreaked havoc on Megan. She was on oxygen which she has never been on since she was trach'd. Thought I would see if anyone has heard of it and how "rare" it is. Also maybe it could save some time for someone else who has something they think is pseudo but is not going away with treatment and can ask for this specifically. It was so frustrating to have dealt with this for 2 months and seeing Megan deteriorate with sickness that could have been stopped had this been looked for or her culture grown out longer prior to the ER and the ICU!!!

01-24-2010, 12:01 PM
The last time Logan was hospitalized a culture came back with an infection in his trach. I don't know what the exact name of the infection was...but he had to go on antibiotics. They couldn't get an IV in (he is an extremely hard poke!) but they did 2 IM shots and then we went home on antibiotics thru the the g-tube!

Big Al
01-24-2010, 12:22 PM
every study i've read seems to think it's pretty rare, and in all but one case it was hosptial aquired. I'm suprised that the infection control officer at the hosptial isnt tring to track down the source of the disease. Once treatment is done and you go home change all your equipment that holds liquids (humidifier chamber, scution setup, ect) as this bug grows in liquids.

some of my reading material:

01-24-2010, 10:21 PM
Oh GREAT! Another super bug, and it doesn't even want to let the lab know it's there until 7 days +!!! Our lab throws everything out in 3 day if something grows. If nothing grows, I think they still throw it out even though they are supposed to keep it for 5 days, but even that isn't long enough to identify this bug!

Tommy's had psuedo so many times they think at times it's just colonized and then flairs up and becomes active. Sometimes it's clear the prescribed antibiotics aren't working. Sometimes we have found out he has become resistent, others not so. So, this makes me wonder if he has something else that needs more time to grow before it can be identified. You know I'll be sure to bring this up to Tommy's Pulmonologist (and Tommy's Dad if he hasn't seen this post yet)!!!