View Full Version : Much Sooner Than Expected
11-24-2009, 02:45 PM
I thought the date was jan 7, until I realized jan 7 is a Thursday and the Doc only does surgery on Mondays. Her bronch and PICU admittance is scheduled on Dec 7, one week from Monday. I am extremely nervous. I don't know what to think, expect or believe. I haven't had time to mentally prepare for this. Her pulmonologist thinks she can do fine and was surpised that the ENT was so fast to suggest this as he usually is very conservative and doesn't like to do this in the winter months. I believe she can do well without the trach. Trach changes are a breeze. I remove the trach, take my time cleaning around the stoma, give it time to air out and she does fine. She breathes the same with it than without it- however she breathes through both her stoma and her mouth. She won't tolerate her PMV, like I mentioned earlier. it's not that she can't, it's that she won't. We all believe that she would tolerate it if she would give it a chance. However she pitches a fit when it goes on. She got so mad that she wouldn't even look at the therapist yesterday.
11-24-2009, 06:42 PM
Wow! Well, I always like closer. Less time to think about things. It's very exciting.
Major :hug:s. I hope everything goes well. Stay positive!!
11-24-2009, 08:07 PM
So exciting! I agree maybe it was a blessing with the dates, less time to stress. I think it is a blessing and take it as it comes if it is ment to be it will be. Praying all goes smoothly.
11-24-2009, 08:42 PM
that is super exciting!! I agree its a blessing that you dont have another whole month to worry about it. I say the same thing that it would be exciting to be decannulated but at the same time its nerve wracking to have any change even though its for the better. So keep positive!! and prayers for the best outcome
11-25-2009, 12:48 PM
Wow! I think everyone is right, it just gives you less time to worry. Luke is scheduled for the 2nd and I am not sleeping well these days. He's had the trach so long now, I can't imagine him without it. Not that I wouldn't mind getting adjusted to it though ;). I hope things go well and Addisyn has a smooth scope and decan!
11-25-2009, 04:13 PM
Wow, hope it goes well. It would be a lovely christmas present to be trach free:)
11-25-2009, 07:22 PM
wow, that is right around the corner. sorry you havent even had time to absorb it all as of yet, that can forsure be so overwelming to anyone. of course we hope for success when the trach is removed and everything turns out peachy keen, but if it dont i can see you will be prepared as well. we forsure will be thinking of you all and hoping for good days ahead. :) :) i know that u are concerned about not being able to wear the PMV, but again, not every child can wear the pmv. if u have trouble getting her to wear the cap, sk if you could put the cap on while sleeping. when Kaylie went for her sleep study i put the cap on right before she fell alseep because she hdnt worn a cap in a long time, and i was like u i didnt think she was going to keep it on. again best of luck with whatever happens..:hug: :hug:
My little figther
11-25-2009, 08:05 PM
Wow How exciting see it as a blessing in disguise - remain positive. Everything will be Ok I am sure. I am so very happy for you. Keep us posted and Happy Thanksgiving
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