View Full Version : Interesting-H1N1 and seizures??
This isn't about us but got my attention enough to mention it.
1 family here (2 healthy kids)-the little boy (3 years old or so) got H1N1. He did well with it-high fever that lasted a couple of days but really was fine. Then, his sister (I believe she's around 10-14 months) started having seizures-she didn't appear to get H1N1, but this happened RIGHT after brother had this-like the next day. Now she is going in for testing.
Maybe a coincidence..but get this....
THEN...our friends were talking with another family and the SAME thing happened. The only difference this time was that the 1 sibling had a history of seizures, but they were completely under control and the sibling hadn't had one for quite some time. The mom said the same story-the 1 sibling had H1N1...the other showed absolutely no signs of the virus but started having seizures. (don't know the age of these kids)
I guess I don't know why I posted this-but I just thought that this was all too odd to not post. THIS HAS NOTHING TO DO WITH THE VACCINE. Neither family had the vaccine. Has anyone heard anything like this? These 2 families live states away and don't know eachother-they just happen to both know our friend.
Now I could easily see that kids w/H1N1 could get seizures because of the high fevers that come with it...but is it coincidence that the sibling...with no other symptoms gets seizures at the same time?? And, that it happened to 2 families?? Any ideas on this??
I haven't heard of it, but it doesn't surprise me. Infections can cause really strange behaviors. We were told that sometimes when kids are first diagnosed with a seizure disorder, their first seizure was brought on by an infection.
I haven't heard of it, but it doesn't surprise me. Infections can cause really strange behaviors. We were told that sometimes when kids are first diagnosed with a seizure disorder, their first seizure was brought on by an infection.
But now these kids didn't have H1N1...just their siblings. Unless they just reacted with seizures and not the illness, which could be as well I guess.
Gretchen(Celia's mom)
10-27-2009, 12:08 PM
Interesting!! However it doesn't surprise me!! My guess(undeducated) would be that that is how the illness manifested itself.
But now these kids didn't have H1N1...just their siblings. Unless they just reacted with seizures and not the illness, which could be as well I guess.
Ooooohhhhhhhh. Now that's REALLY interesting. I wonder if it was just a random coincidence.
Ooooohhhhhhhh. Now that's REALLY interesting. I wonder if it was just a random coincidence.
I know-but how random would it be for 2 different families? Just seems odd to me.
lil' G's mom
10-27-2009, 09:21 PM
Very interesting. We had a little 6 yr old girl ,in a couple cities over, die last week from H1N1. Never showed normal symptoms, her body temp actually dropped to below 96. So I really don't think they yet know all the ways it can manifest itself.
suzanne2545
10-27-2009, 11:34 PM
You may recall that I posted awhile back about Berkeley having an apparent seizure. Guess what, Ian was sick with swine flu when it happened. Hmmm. B did have a low grade fever when we went to the ped that afternoon but he never got sick.
You may recall that I posted awhile back about Berkeley having an apparent seizure. Guess what, Ian was sick with swine flu when it happened. Hmmm. B did have a low grade fever when we went to the ped that afternoon but he never got sick.
SEE---there must be something to this??!! There just must be some kids that respond really with no illness but with seizures. Do you think you'll bring that up to his drs? Has he shown any signs of seizure activity since? Interesting.
KJKK8437
10-28-2009, 07:51 AM
Well ... there does appear to be a lot of buzz on the internet about H1N1 causing seizures, but all of the cases reported were symptomatic for flu or at least had some symptoms.
Interestingly, many of the case studies I'm looking at don't seem to have the kind of high fevers that we might associated with seizures brought on by illness. Apparently there were several cases of confirmed flu and seizures that were being studied in Dallas this summer.
suzanne2545
10-28-2009, 01:30 PM
Berkeley hasn't had anything seizure-like since. I might bring it up next time I'm in . . . which will be next month for Griffin's asthma check up.
It sure is interesting.
Ainsley's Mom
10-28-2009, 01:32 PM
You may recall that I posted awhile back about Berkeley having an apparent seizure. Guess what, Ian was sick with swine flu when it happened. Hmmm. B did have a low grade fever when we went to the ped that afternoon but he never got sick.
VERY interesting! I think this makes sense! And am so glad you have a good possible answer. :whew:
Berkeley hasn't had anything seizure-like since. I might bring it up next time I'm in . . . which will be next month for Griffin's asthma check up.
It sure is interesting.
I'll let you know if they find out anything. I guess the family with the little girl are in today to get an EEG. I'm thinking they aren't going to find anything. I'm 3 families and then some when you search it-though they say that they had flu like symptoms...I have a feeling that this is all related to H1N1. We'll see.
SO-ANOTHER family has had this happen to them! 1 sibling H1N1....then the baby girl (not the one w/H1N1) had a seizure. SO-my counting is 4 families that this has happened to....only 1 of the family has history of seizures and that child was on meds and had his seizures under control for a long time.
4 families..and that is in my small small networking group...that is just too many to be a coincidence, don't you think??
Ainsley's Mom
11-02-2009, 02:40 AM
SO-ANOTHER family has had this happen to them! 1 sibling H1N1....then the baby girl (not the one w/H1N1) had a seizure. SO-my counting is 4 families that this has happened to....only 1 of the family has history of seizures and that child was on meds and had his seizures under control for a long time.
4 families..and that is in my small small networking group...that is just too many to be a coincidence, don't you think??
It would seem so!
twintotwin
11-03-2009, 09:58 AM
Wow, Katie that is so bizarre.
I've been keeping a close eye on Milo because he's susceptible to seizures.
So you're saying that the siblings were tested and came back H1n1 negative but had seizures?
Wow, Katie that is so bizarre.
I've been keeping a close eye on Milo because he's susceptible to seizures.
So you're saying that the siblings were tested and came back H1n1 negative but had seizures?
That's just it--nobody is testing so it is hard to know. From what I know-the 1 sibling has had strong H1N1 symptoms-high fever, cough...all that jazz...the other sibling as very little if no symptoms and they were the ones who had the seizure?? I talked to my ped about this-he is an old wise dr and into research and found it very interesting. He said that he hadn't heard anything, but that he'd like to look into it and would like to keep his ears open about this. He also said though that things don't always seem as they appear..so that it could very easily mean nothing.
He did say that they have seen a lot of seizures with children who appear to have H1N1...which would be totally understandable because of the high fever that typically goes with it.
There may be absolutely nothing to this...but in my opinion 4 people that I know in my little network have had the same thing happen to them. I personally think that it is just too much to be a coincidence. ??Who knows.
Give those little guys a hug for me-take care
Wooders80
11-03-2009, 01:36 PM
Are they not just febrile convulsions, which any child is susceptible to when their temperature rises quickly? As H1N1 gives you a high temperature, would this not be the cause? In other words, the reason for the seizure like behaviour is the high temperature. Which although caused by H1N1, it's not part of typical H1N1 symptoms, but some children are prone to febrile convulsions (i.e. seizure like behaviour) when their temperature rises quickly.
suzanne2545
11-03-2009, 07:30 PM
Well, if, and it is a big if, they were related, my son's seizure was definitely not febrile.
I'm curious too what the other seizures looked like. Kate do you have any info?
Well, if, and it is a big if, they were related, my son's seizure was definitely not febrile.
I'm curious too what the other seizures looked like. Kate do you have any info?
I don't-I wish I did. I just know that these were not due to a high fever-these kids had little if no fever. I don't know specifics on what they looked like. I wish I knew these people personally-but it is through a friend. The 1 family that lives in town is a higher profile family-and they aren't talking about it much at all...not even to my friend who is her pretty good friend. They have 2 healthy kids-and then this seizure thing happened...they have been pretty upset and not wanting to talk much.
I wish I could look more into it. I'll let you know though-I'll ask my friend if she has any details. I know that Mitchell's speech teacher was the other one who knew a family and she said that the little girl stopped breathing with her seizure?
Livi's_mama
11-03-2009, 10:54 PM
Febrile seizures actually aren't caused by the high temp, they are caused by the rapid jump in temp over a short-short time frame.
They could go from say 97.9 to 101.5 in 5 mins and that causes it, not the 101 temp.
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