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Jimmysmom
05-20-2002, 09:34 PM
Hi

My son is also vent dependent but unfortunately we don't have the problem of walking around because due to his syndrome he can't walk. I know that they don't make longer circuits as we had asked for them too. It is a good sign though that he can be off the vent for a period of time and be happy about it. One idea would be to get a small wagon and teach him to pull it behind him. This would still give him some freedom but lessen the worry for you of all the disconects. I hope one day that I too might have this problem.

Good Luck

Anne, mom to Jimmy ( 2 1/2) GBS, trach, vent dependent, g-tube

Ardyth Geldart
05-26-2002, 09:00 PM
Hi just a question , how long are the circuits,my daughter is on the LTV and I think hers are around 10 feet, but I'd have to check to make sure.The RT's at the hospital extended them, she is on a CPAP of 14 and she gets the pressure she needs and can run around a little bit.