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View Full Version : Possible Decan for end of June!!!!!!


Nate's Ma
04-27-2009, 03:07 PM
We are so excited. The bronch went well. It appears that Nate's SGS has resolved. The ENT said that he must have had a nasty virus that caused the growths and swelling, but it has all resolved on it's own. Initially they thought he had HPV, but the biopsies have come back negative. You can now see Nate's vocal chords clearly and his airway size is normal for his age. He will not need an airway reconstruction as originally thought. He does indeed have trachomalasia. We will be getting a CT scan of his chest in June. Not sure why, but the ENT wants one d/t the trachomalasia.

In just 3 months he has turned a major corner. We are downsizing his trach today to a 3.5 Bivona and increasing the use of the PMV. We will see the ENT in one month and possibly cap his trach. Sleep study in 6 weeks and then bronch with possible decan at the end of June.

I walked into the hospital today without any expectations and I was not disappointed.

Nate starts back to school on Thursday with an nurse. We have come such a long way since November. Thanks to God for his healing hands and everyones prayers. You guys are an awesome support.
:D :grouphug:

kirafaesmom
04-27-2009, 03:28 PM
Wow, Wow, WOW!

JWorthington
04-27-2009, 03:43 PM
:woohoo: Fantastic news, you must be so pleased!:)
Julie x

Baby1107
04-27-2009, 07:28 PM
That is awesome news! Less than 2 months to go with a Trach...woohoo!!!!!!!!

Kaylie
04-27-2009, 07:31 PM
Thats so awesome, i want to wish you the best of luck. i hope everything just falls right into place, you guys sure deserve it.. keep us posted,

lynn
04-27-2009, 07:45 PM
Great News!!! :)

faywrayy
04-27-2009, 07:58 PM
That's great news!!!

Niff
04-27-2009, 09:37 PM
Woohoo!! What great news!!! :D

Ainsley's Mom
04-28-2009, 02:59 AM
It's great to hear such good news. We like those kind of surprises.

debvec
04-28-2009, 11:30 AM
that is great news!!!! congratulations!

Myself
04-28-2009, 09:33 PM
WHOOT!! WHOOT!!
Great news!

Lisa

alizesmom
04-29-2009, 10:51 AM
:thumb: :D Karen