View Full Version : Constantly amazed

04-22-2009, 10:54 PM
I have said many times that all of our kids are alive only because they are fighters. Alize continues to prove me right. He is currently septic with a blood culture positive for pseudomonas which means his PICC line and shunt are probably infected. An incision from his last shunt revision has opened slightly and CSF is literally dripping from it along with some green drainage. Despite all of this Alize is awake, listening to his IPOD and chewing his fist. Right now his pain is under control and we spent the evening cuddling in front of the TV. The kid is awesome. Karen

04-22-2009, 11:06 PM
What a fighter! And YOU are an inspiration with your positive outlook.

04-22-2009, 11:12 PM
He gets his fighting spirit from his ever loving mama!!!

04-22-2009, 11:25 PM
Oh my goodness; I'm not sure if I'm more amazed that Alize's still here, or that he's here and still enjoying quality of life. You truly are an amazing family and have travelled this very difficult road with an amazing amount of grace.

04-23-2009, 12:11 AM
When you feel this much love, well, you just do not want to leave. This is a testament to the love you have given him.

Hugs to you,

04-23-2009, 07:13 AM
He sounds such a strong little boy and sounds like he has an amazing family. Sending you lots of love and hugs.

Bea xx

My little figther
04-23-2009, 07:58 AM
What a fighter!!! He is truly amazing and so is your family.

04-23-2009, 08:31 AM
I never ceases to amaze me how much these little ones can cope with. Alize is obviously happy and relaxed with this family and that's the best way to be. What a wonderful, amazing little boy he is and he is so lucky to have you to love and care for him.:hug:

Julie xx

04-23-2009, 09:04 AM
Wow. Wow. Wow.

04-23-2009, 10:06 AM
Alize is just awesome, no doubt about that. What a fighter. I am happy that despite his troubles things are going well and his pain is under control so you guys can enjoy life. :hug:

04-23-2009, 10:21 AM
Wow. That's amazing.

04-23-2009, 12:24 PM
Wow. Fighter is true. I know how I'd feel if I was going through all that he is!

04-23-2009, 01:21 PM
:hug: He is an amazing young man and you're an equally amazing mother.

Btw, what's on his ipod? Whatever it is, he must love it!

04-23-2009, 02:25 PM
Amazing - you are both just amazing.

04-23-2009, 02:31 PM
what a lovely post to read.
alize is amazing.

04-23-2009, 04:10 PM
He truly is. I keep praying for you all.

04-23-2009, 04:26 PM
He is amazing! I'm so impressed with you and all of your courage.

Ainsley's Mom
04-23-2009, 04:35 PM
He IS a fighter. It's very touching actually, to imagine you cuddling together and savoring every moment. I hope the moments keep coming and coming.

04-23-2009, 06:21 PM
Glad to hear that Alize can still enjoy his music and cuddling- nice that his pain is under control also.

04-23-2009, 06:42 PM
Please give him cuddles and kisses from all his friends here on the Trach board.


04-23-2009, 07:52 PM
Karen that moment you described truly brought a smile to my face...........yep just listening to my ipod, and hanging with my Ma!
Awesome moment, Karen.