View Full Version : Parents with chronic pain...?
04-15-2009, 05:56 PM
I know there are parents out there dealing with chronic pain and wondering what you do to relieve it? Do you take opioid meds? Is that considered risky with a trach kid?
I'm ridden with arthritis and degenerative disc disease as a result of years of being a ballerina, pretty much contorting myself on a daily basis. I have scoliosis to top it off. Every single day of my life I am in pain. I take the maximum amount of Tylenol and Advil allowed without killing my kidneys or liver.
It's getting VERY difficult for me to handle lifting Elijah. My doc gave me a script for a strong med but it makes me feel detached. The pain is completely muted, I can bend and lift and do everything I could never imagine normally. I don't know how I would react in an emergent situation if I was alone. I know it takes time to get used to the medication, which I've taken before in situations where I've always had another adult at home. It really makes my head foggy.
Now that I am alone due to so many nursing hours being cut, I'm wondering if it's really safe to take on a daily basis? Is it something your body gets used to?
I just can't imagine living like this for the rest of my life...
04-15-2009, 07:21 PM
I guess you could call my endometrosis chronic pain. I hurt 15-20 days out of the month on avg. A good week where it hurts to move let alone get up and function. But I do get up, kind of have to. Although today, with the pain I have lounged all day long and not done much of anything, when hubby was home he did everything. Thankfully he tucked Emma in before he left. Early bed time for her but I couldn't lift her. We are all hanging out in her room with her anyway until real bed time.
I chose not to take the pain drugs, I don't manage well on them. They either make me nonfuctioning or make me puke or make me itch so bad I can't stand it. I can't even imagine having to be in an emergency situation while on them. But they effect people in diffrent ways, and I am super sensitive I think. Some people may be able to function well and take care of trached kids on them. Its kind of one of those "what do you personally think" things.
I would NOT take oxycodone on an daily basis, it is addictive, and I had issues with getting off of it when I had my kindney stone/bladder surgeries where I was sick and surgery after surgery for 6 months. You do get used to it, and I had to have my dosage upped twice to even feel effects in pain reflief from it.
Have you tried homopatheic or herbal remedies? I really do feel that some of the stuff I do for pain has helped me a lot to be functional, not pain free persay but functional. My sister has psoriatic arthritis and she has also had luck with natural stuff for some relief of pain
04-15-2009, 10:37 PM
I don't have alot of time right now...I am dealing with joint pain/stiffness constantly, presumably of an autoimmune source, not specified yet. Currently, I am taking 200mg BID Celebrex (not alot of 30-somethings on Celebrex!) and Elavil (amytriptilene), initially 25 mg QD (night). That was too much, so I'm now taking 10 mg. This has helped enough that I can function through most of the day without every movement being *so* painful.
I would be hesitant to take oxycodone even in my situation with Hannah. That stuff hits me really hard and I'm out for hours.
I've got a friend at work that has DDD. Let me check with her and see what she uses. They did mention spinal fusion to her, but she isn't ready for that yet.
Hugs Kerry. I can relate to daily pain on some level.
04-15-2009, 11:09 PM
I have had some w/ my knees, no where near the extent of what you are going through... the 2 things that have helped my knees is the chiropractor (don't know if that is an option w/ scoliosis) and glucosimin/chondroitin/MSM.
Don't know if that will help you... I hope you can find some relief... nothing worse than living in pain.
04-15-2009, 11:09 PM
aw man Kerry, I wish I knew something that would help....but I'll keep you in my prayers. *hugs*
04-16-2009, 05:35 AM
I'm sorry Kerry, that sound pretty dreadful. I got Diclofenac (voltarol) when I injured my back heavy lifting, that worked pretty well its an NSAID so you can get it over the counter. Glucosamine would be a good bet too. Hope you can get some relief from your pain, does your doctor realise the amount of care you have to give your chlildren? The last thing you want to be is spaced out.:hug: :hug:
04-16-2009, 10:33 AM
Who can you ask for help locally - for you? To me, your email sounds like a reach out for some help.
Arthritis (let alone scoliosis) would be so tough with lifting of children (and you have 4?). I am not sure of your family (partner) situation. How are you getting on in the day?
I can't give medication advice, but my Mum has really bad athritis, as did my Gran, I have seen how hard it is to live with. You may think it is 'your history', dance that has caused it but I sometimes think our immune systems get so low caring for our kids, that this brings on all sortso f things. Chronic pain is too hard.
Sending you hugs and kisses - you are doing are great job, but you probably need someone to help you!!
04-16-2009, 10:40 AM
Is your arthritis an inflammatory arthritis? See if you can get this book from the library: http://www.amazon.com/New-Arthritis-Breakthrough-Fibromyalgia-Inflammatory/dp/0871318431/ref=pd_bbs_sr_1?ie=UTF8&s=books&qid=1239892747&sr=8-1
04-16-2009, 01:25 PM
Hi Kerry. SOrry that you're going through this. If you have some neuro pain due to your back issues, then drugs like amitriptyline or gabapentin can help. They make you feel foggy at first, but your brain does compensate over the course of a few weeks and then you can function normally. They also help you sleep, but you can wake up and function. They don't irritate the stomach, and they are non-addictive. The downside is that they do need to be taken daily, the pain-relieving effect takes up to a month to kick in well, and you can't just stop them, you need to phase them out gradually.
The opioid analgesics are helpful for getting people over flare ups in pain. One option just below them is Tramadol (http://en.wikipedia.org/wiki/Tramadol). This has a long lasting action and may be less habit forming than other opioid painkillers. It makes some people feel a bit spaced out though.
Meditation and relaxation techniques are very important tools in the management of chronic pain. They help to reduce cortisol levels in the body (stress hormone which increases pain sensitivity) and increase endorphins (hormone which reduces pain sensitivity). Try whatever technique appeals to you. If you find it hard to stay in one position then something like Chi Gong (SPelling??) may be better for you. It's a series of very gentle movements incorporating breathing - like Tai Chi but less stretching.
Are there any Pain Management clinics in your area? We have them here - they're a multidisciplinary team of an anaesthetist (specialises in all the different forms of pain relief available), physiotherapist, occupational therapist and psychologist to assist with all the different aspects of a person's chronic pain. The physios work with activity pacing (I think of it as energy conservation and management!), the OTs provide any equipment that may make daily living more tolerable, and the psychologist helps with any relaxation techniques and mental blocks to self management that the person may have.
04-16-2009, 02:31 PM
Thanks for that link, Suzanne, that book is exactly what I think I need. I think the doxcycyclin tx is interesting.
I have septic arthritis in my right elbow (I'm a righty), from a strep infection many years ago. I can't straighten or bend it all the way. It's my constant source of pain. I can manage my back pain with exercise, and my feet shouldn't hurt when I lose the extra baby weight (it's been almost a year!)...my doc has mentioned replacing my elbow down the road...how horrible!! This is my RIGHT arm...I kind of need it! The pain shoots right down to my hand and up to my shoulder on bad days.
I'm looking forward to summer when it's better weather and I don't dwell so much on my physical pain.
I think what I really need is my nursing hours back! :mad:
04-16-2009, 02:50 PM
I think what I really need is my nursing hours back!
I totally second that!!
Kerry, No one would ever know you had this going on all this time. You're always focused on those dear babies of yours. That says to me that it really is getting unbearable. My husband has arthritis and had a hip replacement last year at the age of 53 (considered young for this). Anyway, the year leading up to his replacement was horribly pain ridden for him. He went to pain management and the drug that worked the best for him was gabbapenten (I know I'm not spelling that correctly). It one of those drugs that fools with your brain and makes you think you're not having pain. He still had pain but it was more bearable. Fortunately for him the hip replacement has been a total cure and he is walking around like a young buck again and taking no medication for pain except diclofenic for the other arthritis he has. Good luck finding the right combination that does not make you zombie-like but able to function................:hug: to you and those beautiful kids!...........Evy
04-18-2009, 12:50 PM
Kerry -- I don't know much about elbow replacements, but the year Alex was born, my mom had both knees replaced, one right after the other. She says the relief from the pain was amazing, and she's sorry she waited so long. You'd never know it to look at her that there is anything "artificial" about her joints.
04-18-2009, 01:05 PM
I have had chronic back pain since I was 14 (I am almost 37 so 23 years now) and fell doing the highjump. I was in a growth spurt and my back has never beent he same. I have constant pain daily..... sometimes as high as a 9 most of the time a muted 3 or 4 level. I use Tylenol w/codeine when it is at its worst (I can get it over the counter in Canada) I am lucky to have a loving husband who is a good masseuse and that helps a lot at the end of a long day. My stepmother is a Herbologist and she makes me special massage oil and rubs to use to help with the pain as well.
My husband does most of the lifting but I have to do all of the personal hygiene (they are 13 & 5 year old girls) so he transfers them from and to their chairs and then they help how they can lifting their bums etc. If we have nursing during that shift I just let them do it and save myself.
SO yeah I think you need to figure out how to get your nursing hours back. Our hours are used especially for that...to save our bodies. Plus we have 2 younger children as well so it can be real helpful to have someone else for the girls to spend time with and let us rest.
04-18-2009, 11:07 PM
Celebrex and Neurontin is stuff I have taken with my back issues. Neurontin isn't bad, actually. I see a Physiatrist (Rehab doc) who assist me with pain management. Also, I get shots of toredol (similar to tylenol) locally sometimes too when I have bad muscle spasms.
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