View Full Version : Anxious about Scope
04-15-2009, 05:48 AM
Nadia has her first scope (second one ever) since the trachy next week and I'm starting to work myself up about it.
I thought I would feel ok about it but not sure whether it's because all the bad memories are strating to flood back or because I'm holding out so much hope. Regardless I feel sick to the bottom of my stomach just thinking about next Wednesday and really don't want any of this to start to rub off on Nadia.
I'm also worried that they'll come back with more bad news. I know that in a lot of cases the trachy actually causes further damage leading to more problems.
The day before we also have an appointment at GOSH to rule out C.F so a pretty big week for us next week.
Any tips for how to cope?
Mackenzie had a sweat test for CF not too long ago and I was an absolute nervous wreck. Is Nadia showing any respiratory symptoms that might cause you to think she may have CF? If she's not on any support, I would be more likely to think that the test will go fine.
:hug: I hope everything goes well. And if you need to, take a few hours to go on a drive. Find a remote spot and ball your eyes out before venturing to the grocery for some icecream. ;)
04-15-2009, 08:43 AM
hi sarah -
emily is scheduled for a scope next thursday. she's had quite a few in the past. it really isn't that bad, honestly!!! it's not nice watching them put her under but that only lasts a moment. apart from that it's pretty boring sitting around waiting for your turn, and lots of the kids get grumpy with lack of food (not em though!!)
personally i don't like the state of the new trach tube they put in after the scope because the ties are always way too tight. it's nerveracking waiting to see how she recovers from the aneasthetic, but she's always been fine.
i suppose mainly you just have to keep your head down and stay cheerful until it's over.
let us know how you get on
04-15-2009, 11:03 AM
I'd be really surprised if she does have C.F. She tested negative in Holland when born but ped. consultant wanted her to be tested again to rule out seeing as she is so small and has a lot of secretions. She had a sweat test a couple of months ago but it proved inconclusive (basically she didn't sweat!) but then a blood test showed one defected gene. Hence they want to re-run but at a specialist hospital. Most probable outcome is that she will be a carrier.
Funny that I'm not so worried about that, more the scope. Just praying that we get seen in the morning and near to the beginning of the list. Last time we had to wait till 5pm and Nadia screamed blue murder from midday onwards - it was VERY stressful!!
Clare - good luck with Emily's scope next week too.
04-15-2009, 12:15 PM
the good news is that a scope is over pretty quickly. we find the worst part is watching Sam go to sleep. Then the scope only takes about 20-30 minutes. we usually go to Cafe Nero or Costa and indulge ourselves in a very large coffee (the caramelatte is nice!) then we head back to the hospital. Hope it goes well:hug:
I also hate scopes, the worst part for me is trying to keep him entertained until its his time to go back- and he is hungry and very mad that I wont feed him! We just had one on Thursday and waited 4 hours in room till it was Josephs turn.. Once he's taken back, I usually dont even have time to get a drink and sit down before the docs are looking for me.
Joseph was also tested for CF 4 times-(2sweat, 1blood, 1DNA) so I know how unsettling that feels. It was finally decided he is a carrier but doesnt have it. - so in our case my 3 daughters need to be tested if/when they decide to have kids to see if they will pass it on. (When all 3 were born, testing wasn't done routinely)
Anyway- try not to obsess over the scope and try to put it out of your mind till it is time to go. (much easier said than done) I usually end up starting a cleaning project on something I hate to do regularly and tear my house apart to keep my mind off of things.
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