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Ainsley's Mom
04-14-2009, 08:40 PM
Great idea Gretchen, I'll start it since I have a picture of Ainsley's stoma handy from the thread about Ainsley's stoma's now sunken appearance. Everyone is invited to post a picture of their child's stoma so we can get an idea of the variance in appearance.

Thanks!

http://farm4.static.flickr.com/3382/3443460004_d2f7829e0c.jpg

kirafaesmom
04-14-2009, 08:43 PM
What a great idea! I'll have to get a pic of Kira's. Ironically, I was planning on getting a pic to send to her regular ped. We didn't see "our" doc when we got the dx of granulation tissue. How long does it take before it's not bright "blood" red and looks more healed over like Ainsley's? I know Kira's trach is "fresh", but it sure seems to be taking a long time to get rid of the angry look of the granulation.

Gretchen(Celia's mom)
04-14-2009, 09:00 PM
Here's Celia's stoma:
http://i42.photobucket.com/albums/e331/goddessgretcho/Stomapics003.jpg

Celia's stoma is very sucken from having so much gran tissue removed, they thought it was just on the surface but got to lazering it and it went pretty deep,,That was one nasty wound for awhile but as you can see it healed perfectly!!

FightingForFaith
04-14-2009, 09:16 PM
Susan- Faith's stoma looks exactly like Ainsley's. Is her's huge too? Faith's is super big and stretched out. We just recently saw our ENT and he said he's not worried about it.

elijah'smom
04-14-2009, 09:36 PM
Here is Elijah's he was trached 10/2006


http://i157.photobucket.com/albums/t80/aljlpn/021.jpg

Hope
04-14-2009, 10:00 PM
Shelby's looked a lot like Ainsley's too -
Hope

Ainsley's Mom
04-14-2009, 10:21 PM
What a great idea! I'll have to get a pic of Kira's. Ironically, I was planning on getting a pic to send to her regular ped. We didn't see "our" doc when we got the dx of granulation tissue. How long does it take before it's not bright "blood" red and looks more healed over like Ainsley's? I know Kira's trach is "fresh", but it sure seems to be taking a long time to get rid of the angry look of the granulation.

What you see here is actually scar tissue not granulation tissue. My understanding is granulation tissue will always look the same but it can shrink back down and disappear. That is what happens with Ainsley. Two weeks ago she got some granulation tissue, was coughing a ton, but now it's gone and we're just left with the scarring. When Ainsley gets it it is very painful. I put Tobridex drops (rx) on, it a few in the trach, 2x per day. Then make sure it's good and clean, dry, and apply Nystatin powder and an Exu-dry dressing. It takes about a week of doing this care for it to go away. Here's a picture with the granulation. You have to look close for the difference but it's right under the cannula and brighter red. This was taken in November and you can see it looks different from the stoma picture I took today. http://farm4.static.flickr.com/3222/3031924199_e25f78bbe4.jpg

kirafaesmom
04-14-2009, 10:32 PM
What you see here is actually scar tissue not granulation tissue. My understanding is granulation tissue will always look the same but it can shrink back down and disappear. That is what happens with Ainsley. Two weeks ago she got some granulation tissue, was coughing a ton, but now it's gone and we're just left with the scarring. When Ainsley gets it it is very painful. I put Tobridex drops (rx) on, it a few in the trach, 2x per day. Then make sure it's good and clean, dry, and apply Nystatin powder and an Exu-dry dressing. It takes about a week of doing this care for it to go away. Here's a picture with the granulation. You have to look close for the difference but it's right under the cannula and brighter red. This was taken in November and you can see it looks different from the stoma picture I took today. http://farm4.static.flickr.com/3222/3031924199_e25f78bbe4.jpg
Thank you Susan....I'm now CERTAIN that Kira's is granulation tissue; the ped we saw (not our regular doc) didn't prescribe anything...now that it's not clearing up at all and actually growing, I'm going to ask for Tobridex to help clear it up.

Gretchen(Celia's mom)
04-15-2009, 06:11 PM
Bumping this up,,Anyone else have pics?