04-03-2009, 05:17 PM
Hi everyone, my son has started having what i thought could be seizure activity recently. These episodes consist of staring down to his right shoulder and occasionally jerking of his arms. These episodes usually last and average of 3 minutes and happen twice a day. He seems to be still aware of his surroundings while its happening. So we took him to the Neuro for an opinion and luckily he had an episode in the drs office. The doc admitted us to Columbus Childrens for a EEG and 24 hour observation. Unfortunately i was right, they are seizures:( They started Isaac on Keppra. First we tried 1 ml twice a day for 5 days. That didnt work so we went to 1.5 ml twice a day..that didnt work either. We are now at 2 mls twice a day. They ordered us to try these doses for 5 days to see if they are making a difference. As of now, we see no real changes. He is still having the seizures. I called the Office and am now waiting for a call back. Im wondering if they can still go higher with this med or if we may need to try another. I dont know much at all about seizure medications and so i was just wondering what your experiences have been with Keppra and how high they can actually go with it?