winstar99
03-04-2009, 05:58 AM
Hi!
I wish I had found this site a year ago - I have had a very hard year.
My 24 year old developmentally delayed daughter had been having trouble breathing for 2-3 years (they thought it was asthma) and in December 2007 the new doctor we went to found the problem. She had scar tissue building in her larynx and closing her airway. He performed surgery a few weeks later, removed the scar tissue and put in a trach. She also had some upper airway obstruction which he addressed in a second surgery. She has had two more surgeries since to remove scar tissue that has grown back (and she still has the trach). In April this year she will have another surgery, this one is a laryngotracheal reconstruction. Unfortunately the doctor feels she needs a 2 stage procedure, so she will have a Montgomery T-tube in place for 2-3 months after the first procedure. The doctor will remove the T-tube and put the trach back (capped) for 2 weeks (as a precausion), and then remove it.
If anyone here has any experience with the T-tube I would appreciate anything you can tell me that might be helpful.
Thanks,
Joann
I wish I had found this site a year ago - I have had a very hard year.
My 24 year old developmentally delayed daughter had been having trouble breathing for 2-3 years (they thought it was asthma) and in December 2007 the new doctor we went to found the problem. She had scar tissue building in her larynx and closing her airway. He performed surgery a few weeks later, removed the scar tissue and put in a trach. She also had some upper airway obstruction which he addressed in a second surgery. She has had two more surgeries since to remove scar tissue that has grown back (and she still has the trach). In April this year she will have another surgery, this one is a laryngotracheal reconstruction. Unfortunately the doctor feels she needs a 2 stage procedure, so she will have a Montgomery T-tube in place for 2-3 months after the first procedure. The doctor will remove the T-tube and put the trach back (capped) for 2 weeks (as a precausion), and then remove it.
If anyone here has any experience with the T-tube I would appreciate anything you can tell me that might be helpful.
Thanks,
Joann